How do I explain to you that being a mother of three
children with Type 1 Diabetes is as completely overwhelming as you think it
might be, when here I sit, one of the most completely blessed people on the
planet?
How do I explain to you that some nights the exhaustion
holds me like a straight jacket…that the nights are all encompassing, and I
will my tears to fall back into my body rather than intentionally give in to
the fear and exhaustion, when I’m a functioning member of society and have the
energy during the day to do everything I must do and so much more?
How do I accurately describe the worry that lays wait in my
stomach when a child announces a very low number, the choking responsibility of
life, and the rolodex of emergency protocols that run through my brain, when
here I sit, appreciating the beauty of life and the miracle of breath that my
boys take every minute of the day?
How can I relate to you how much anger I keep inside that my
children must endure so many biting pricks, and the ebbs and flows of their bodies
instinctual needs for food and water, when I know it is because of this disease
our family harnesses an increased measure of empathy and compassion for people
around the world who struggle with their journeys too?
How am I to complain to you about medical and insurances
systems that are slow, expensive and not completely educated on my children’s
Type 1, when my boys have the best tools money can buy and technology millions
of times more advanced than just 20 years ago?
When 100 years ago they wouldn’t have survived their diagnoses?
How can I lament about the laboriousness of this disease,
the constant stream of numbers knocking knocking knocking all the live long
day, and the infuriating knowledge that there will never ever ever be a break
from this, when we can take walks by the ocean as a family, and are free to
experience any and everything this amazing world has to offer? Sure, maybe we need an extra bit of luggage,
but we’re free to go…
How do I tell you of the frustration banging out of my chest
when people make assumptions about my boys and what they can and can’t do, or
have, or eat…how so many people are uneducated and have no problem throwing
completely insensitive stories and analogies our way, when I have a community
waiting to instantly lift me when I’m down, and hold my hand through the maze
of uncertainty?
How can I relate the fear, when there is so much calm?
How can I be angry, when I am so thankful?
How can I be sure I can’t do this, when I am surely doing
this day after day?
How can I curse a disease that has shaped my kids, and my
entire outlook on life?
How can I be so inconvenienced by something that brings me
closer to my boys?
How can I wish the world knew, when I’m so grateful they
don’t have to know?
Somehow I do.
Somehow the yin and yang of this maddening disease seeps
into me and I do get angry and grateful all at the same time despite myself.
And somehow, through it all, I see that all of these hard
things empower us. They make us realize we’re
capable of so much more than I ever thought we were. Somehow I never imagined we’d be able to love
so hard, and give so much.
Somehow…we’re living a wonderful life.
Despite diabetes.
Because of diabetes. Encompassed
by diabetes.
I don’t know how I do it.
I don’t know how my boys do it.
We just do.
Somehow.
So very well said!
ReplyDeleteMeri, you are a miracle; you express your feelings so emphatically emphasizing the positive. You guide and inspire your three sons in a way I find it difficult to inspire myself - and I've been T1D for only 57 years.
ReplyDeleteYour words, "... Somehow…we’re living a wonderful life. Despite diabetes. Because of diabetes. Encompassed by diabetes. I don’t know how I do it. ...", inspire and encourage me. You "do it" because you are loving and caring, a beautiful person!
Meri, there is NO way to freakin' explain it. Unless, of course you've been there, done it. The pure intensity of the emotions, wheter pleasant or irksome, is enough to drive one to the looney bin. But you, sister, are still standing strong because you must. And that, is the precious gift you give to your boys, and they to you.
ReplyDeleteDear Meri, I have just know about you by tweeter. Ive read some pf your tweets and this emotive and marvellous text. We are from Spain. My daughter has diabetes since she was 11 months. Nowadays she is 16. She tries to take care of her alone. And...that is other kind of suffer
ReplyDeleteAnyway, we have always enjoy life. And as you say before, this disease has allowed us to be more close . Kisses Natalia Lacomba
So, SO good! Love this!
ReplyDeleteSo beautiful. . . .
ReplyDelete