Last month, L’s
Diabetic Life was in turmoil. It seemed
like an angry tiger materialized out of thin air atop his blood sugar
monitor. The numbers were stubborn,
scary and impossible to tame.
Breakfast was by far the worst. It was like the dawn phenomenon on
steroids.
He’d eat breakfast, spike to the moon, and then dive. Dive to the depths of the deepest ocean…all
in the span of say, two hours.
To be clear, I’m no novice when it comes to dawn phenomenon
or breakfast spikes. But there was like
an eternal black cloud over every one of my old tricks. Nothing was working and for the first time in
a LONG time, diabetes was actually affecting L’s life. It all just snuck up on us, quietly enough that I didn't take it too seriously. I simply started putting out fires as each one flared up.
But then it all came to a head.
He was off. As if a
marionette, his blood sugars seemed to control his limbs. Even worse, his brain was muddy, he couldn’t
concentrate.
“Mom, my fingers are shaky and my body doesn’t feel right.”
He would wander the classroom completely in his own
world. Trying to figure out what he was
feeling. Was he low? Was he high?
He didn’t know. All he knew was
something was so way off, it was reason for concern. He checked his sugar so many times during the
day, he was becoming obsessed. Usually
food or insulin would fix the feelings…but in this instance, it seemed there
was no quick fix to what was happening.
The Friday a few weeks ago was the last straw.
“Mom, I can’t concentrate because my body keeps telling me
something is wrong. My stomach feels shaky. Can you pick me up?”
That day his numbers spiked to the high 500’s and then an
hour later he was in the 40’s with a million units on board. I picked him up from school. That was huge. I don’t leave work to pick my boys up from school for
diabetes unless it’s a big deal. This
was a big deal.
I called the Endo.
Pre-bolusing. Super-bolusing. Rage-bolusing. Nothing was working. Do I raise the insulin to carb ratio for
breakfast? But he’s spiking and then
dropping dangerously low. How would more
insulin fix that? Does he need more
basal prior to breakfast? There were
like a hundred scenarios running through my head.
The Endo suggested a load of changes. But my swelly brain wondered how I would know
which one was fixing the problem if I did them all at once? Making a decision was never so heart
wrenching. I didn’t see how I would ever
be able to fix this for him. I honestly
felt like I was defusing a bomb. One
wrong move and it could all blow up in my face…even worse…blow up in his
face. This was affecting him WAY more
than it was affecting me. I was scared
to do the wrong thing…as a mother, I felt more than anything, like a failure.
Ironically, I did end up upping his breakfast insulin…it was
soon after I had the epiphany to change his insulin sensitivity too. It seems since he was waking up so high in
the morning, (another issue…3 correction boluses wouldn’t budge him from where
he was at night,) it seems the morning correction bolus was too strong and that
was what was bottoming him out an hour or two after breakfast.
I upped his nighttime basals a tad and soon he was waking up
in range. Things were better the next
two weeks, but not perfect.
And then, like magic…it all ended.
Like honestly, the tiger decided to pack up and park himself
somewhere else.
He began going low at night.
I have to do half corrections or things get scary.
He’s not spiking at breakfast anymore, in fact he’s more
predictable than ever.
It’s just insane to me that diabetes can come into our
lives, throw a tantrum and then go sit in a corner like nothing happened.
It seems the culprit was a growth spurt. To be fair, it was the most insane growth
spurt chaos I’ve ever encountered. And
I’ve encountered a lot.
Last week during spring break, he spent 24 hours in the
300’s and 400’s. I gave him enough insulin
to kill an elephant and he wouldn’t budge from those numbers. Flashbacks, a bit of PTSD from the month
before and I was panicking. My sister in
law kept encouraging me to change his set and I said, “No…he’s getting
insulin! He has no ketones! He must be growing again! CALL IN THE GUARDS! I’M GOING TO BLOW!”
But then I did change his set and…nirvana. Everything is back to normal. Well, you know, maybe normal is a pretend
word, but like…regular.
Sometimes I got diabetes in my back pocket. Other times, it has me by the throat.
I’m just glad the fates have smiled upon us, for a while
anyway. I think both L and I need to
catch our breath. Breaths?
Breath.
Breathe, Meri. Just
breathe.
I think one of the hardest parts is the unpredictability and no rhyme or reason. - it makes it impossible to understand and comprehend, which then makes it frustrating when fixes don't worry.
ReplyDeleteI'm so glad he's feeling better & you rock as always.
Same same xoxo
Thinking back on all this now, aren't you glad you never gave up? Sometimes our strongest moments are during the greatest chaos. Even though the chaos is absolutely awful. Sorry you had to go through all that. Kids should have it easier.
ReplyDeletemaybe normal is a pretend word! I am beginning to agree. A few weeks ago we had spikes to the 500 almost daily, I felt like I was throwing insulin at Isaac and nothing was sticking...we changed everything. AND he's grown a total of 2 inches in 4 months...so yes, everything is definitely changing. Our boys are growing and sometimes diabetes just roars a little too loud and a little too long. Glad things have settled down and he's feeling better. Better is defintely good :)
ReplyDeleteI know the feeling. Nothing as bad as L's episodes but I'm in my second pregnancy with Type 1 and this first trimester, now into the second trimester has been kicking my butt. It's so hard to know what's causing what and like you said, making too many changes at once and you have no idea what worked!? I feel like I have another full time job just tending to stupid diabetes. Diabetes is such a crap shoot sometimes (most of the time). Glad to have someone to commiserate with :)
ReplyDeleteI don't know if this helps any, but when I've had those uncontrolable dawn-phenomenon spikes, it usually has to do with a big (maybe high-protein?) dinner the night before. It's like I bolus the heck out of that meal until my BG recovers, and it stays almost "frozen" throughout the night, but as soon as I wake up, the spike resumes. Like many things, I can't explain it... but weird things happen.
ReplyDeleteIt must be the season for defusing bombs!! :(
ReplyDeletexoxoxo,
-Morgan