Wednesday, November 23, 2011

No insulin is no fun.

It can all go so wrong so quickly.

B has been higher since school let out. Is it the different activity level? Should we be switching to his weekend ratios all week? I was so sick of it that I upped his basal for most of the day yesterday and he was still running "higher." 200's. Nothing alarming or anything.

He went to bed in the 200's and shockerprisingly enough...he was 220 when I tested him at 1am.

I corrected and went back to bed.

It was almost 4:00am when he woke me and told me he was throwing up. ("Don't worry" he says, "I didn't throw up on my bed...I can still sleep there. I made it to the carpet.") His blood sugar was 390 and his blood ketones 3.8. His set had been ripped off and was in one sorry state. The cannula was bent in half and the sticker was just a big ball.

We did a quick set change, gave a good sized bolus and went back to bed. For the hour before he threw up again I didn't sleep. All I could think about was that cannula.

Why can't the genius engineers of the world find a way to let us know the cannula is bent? I mean, isn't that important? Our children getting no insulin even for a little bit of time is dangerous. "No Delivery" is no help at all...most of our bent cannulas are found after a lot of research and problem solving beforehand. They will be high for hours before we yank out the set and discover that little culprit.

Maybe I'm asking for the world...but there has to be a way to alert us to a bent cannula. I have a friend that uses the metal ones, and they still have problems. Those metal ones can bend in half too. (Seriously, ouch!)

Watching your child retch in front of the toilet and turn his head to tell you that HE is sorry between hurls is heart breaking to say the least. "Why are you saying sorry honey? I'm sorry."

"It isn't your fault mom...I must have pulled it out when I was sleeping."

Heart. Rips. Out. Of. My. Chest.

I am not talented enough to convey my anger at this disease today. I sit here having my silent temper tantrum so the boys do not see. I have seen them suffer through an improportionate amount of ketone inducing "problems" the past few months. Am I getting soft? Am I letting them down?

I feel like I am.

I was getting a pedi with a friend, (my very first one, thankyouverymuch!) and she pointed out that I am always feeling guilty about something. Truer words have never been spoken.

I have a lot of responsibility and I don't feel like I can put 100% into any one thing. I think that is common with parents with diabetes, or any other disease or disorder for that matter. Seeing your child suffer and knowing that maybe, if you were more diligent their suffering would never have happened, or perhaps could have been lessened? Well, that is enough to put my swelly brain into a tailspin. is on the ground right now banging its hands on the carpet...with its legs flailing like a 2 year old.

I am thankful that most days this disease has nothing on us. But the some days that it takes over and changes the trajectory of our happiness...well on those days I'm typing through tears.

Luckily, tomorrow is a new day...Thanksgiving Day for that matter. This incident will seem far removed, and I'll be able to concentrate on the things that matter most in life...

My blessings.

Thankfully, there are many.

(This is day 23 of National Health Blog Posting Month, where I am posting every day in honor of Diabetes Awareness Month.)


  1. Attention Meri:

    Love Ya / Mean It

    That is all.

  2. Happy Thanksgiving Meri. You are a blessing and I am thankful for you.
    And seriously, can there not be a bent cannula alarm or something... Maybe we can design it, make millions and retire to the beach. A D beach, with all the D Moms.

  3. Oh, Meri, what a roller coaster it all is. The guilt is always there for me too. But I am mostly aware that if it wasn't there for the bent cannula it would be there for the lollipop or the painful plaster removal or whatever. You are amazing and loved and all thatjazz. Be kind to yourself. Accept the guilt and maybe just carry it a little while, then let it go. Hugs and kisses form England. xxx

  4. When diabetes puts you in the back seat.....I cry too.

  5. I have one of those - a bent cannula. It's sitting here next to my computer. I tried everything for two days before I pulled it out. I saved it so I'd remember that I'm not stupid.
    It's the STUPID cannula!

  6. I use the metal ones (Sure-T) and I've never had them bend before. I've had them clog but not kink. I hate all the troubleshooting we have to do!!

  7. jules has the right idea, carry the guilt but then let it go. the thing that has helped me with that one, is when my L blurts out BG-related apologies. i'm like, there's nothing to be sorry about, it's just diabetes! if i'm always apologizing to her for my (perceived) shortcomings, then it gives her the idea that she needs to apologize as well. i can't convince her it's not her fault if i'm not convinced it's not mine. (hope you could follow that not-very-clear line of thinking!) <3


Moderation now enabled, so comments will not immediately be seen.