Sunday, May 9, 2010

Diabetes Blog Week


Karen over at Bitter-Sweet had an idea. Unite the D blogging community for one week. Have each of us blog every day for seven days on the same topics. Any blog can participate, and everyone is encouraged to give it a shot.

This week I will be joining the ranks, and blogging EVERY DAY about the topics put in front of me.

Please pop over to Karen's blog to learn more, and to jump on board if you would like.

She also has a master list of all the blogs that will be participation HERE.

Monday will be the first day of posting...Subject? A day in the life.

A day in Our Diabetic Life? It's not going to be a short post...I'll tell ya that much.

See you tomorrow bright and early!

Friday, May 7, 2010

Lawton vs. Bike

This last week has been beautiful here in good ol’ Northern Cali. The hills are bright green, the trees are blooming and the weather has been hovering in the paradisical 70’s. It’s a rough life, but someone’s got to live it, right?

Any hoo…the other night we were eating dinner on my in-laws patio…enjoying leftovers from our big Sunday dinner. The two youngest boys hoovered up their meals, (because really, is there any other way when you are 6 and 8?) And then began riding their bikes around the patio table.

They were giggling and laughing, hard and loud enough to bring my father in law outside with his threatening fist in the air. I love this image. He’ll come out and yell “HEY!” and thrust his fist in the air like he going to knock them to moon, all the while sporting a giant smile...or trying his damndest NOT to smile. He can’t be mad at those boys…he tries…but the smile always comes.

So they were riding and Lawton comes up and alerts me. For those who are new here, we have a dog from Dogs4Diabetics. He is our miracle. I don’t write a lot about him, I kinda feel like Braggie McBraggerson when I do…but he so deserves his own post this week, so I’m REO Speedwagoning it...AKA “I can’t fight this feeling any longer!”

Okay, Lawton alerts. The boys finished dinner less than 5 minutes earlier. There is no way. I’m lazy, I’m comfy, I let it go. Lawton walked off indignantly…I was so enthralled with the doves that were perched on the fence I didn’t think much of it.

About 5 minutes later…Lawton goes up to B and jumps in front of his bike. Stopping him from riding. I mean literally, he jumped in front of a moving bike people. What was he thinking?? B avoided hitting him, just barely, and then moved his bike around him to continue riding, only to have Lawton put his head on his lap to stop him again. It was a sight to see: B was peddling, and Lawton was keeping pace with him, his head stubbornly perched on B’s lap.

My sis in law and I looked at each other. "What the heck is Lawton doing??" And before finishing the sentence we both knew. Almost in unison we yelled, “B! Check your sugar!”

He was 72. He had loads of insulin on board.

Now before you go chastening me…I don’t often ignore Lawton. It’s just he has a history of a few false alerts when it’s right after dinner at my in laws. He alerted once, and got a treat when he shouldn’t have…and now he tries every once in awhile to get away with it. He was the little doggie who cried wolf, so I suppose he had to go to great lengths to get us to believe him this time.

Lesson learned.

The dog has been ON FIRE. He has caught so many impending lows this week, he is a rock star. And the brilliance of it all is he is alerting me when they are between 80-100. Before things get out of hand. He knows they are dropping and he has been spot on with his alerts.

Lawton is crazy wonderful.

When I count my blessings…I for sure, ALWAYS count Lawton twice.

Tuesday, May 4, 2010

LOST

I am a LOST junkie. I watch it every week faithfully. I think I love it. I don’t know why I look forward to it so much…it is just so intriguing to me. I love speculating what it all really means. The thrill of the hunt I suppose.

For those who are not LOST fanatics...let me give you a SUPER brief teeny tiny synopsis of what is going on.

The show has been on for 6 seasons. In the very first episode, there was a plane crash and now these people that survived are on this mysterious island…faced with monsters, things from dreams, shadows from their past, and mysterious groups of people, all there for different reasons it seems. (One such group for example, is called “The Others.”)

Point is…they don’t know what is real, and what is not. Who is good, or who is bad. It is a mess of confusion and it is up to the audience to determine what it all means. Different characters view their journey different ways. In the beginning, John Locke was known to be the man of faith. He believed he was brought to the island for a reason. Jack Shephard was a man of science. He believed that it was all neither here nor there…but just focused on how he could get off the island. As the seasons have progressed, so has the cast of characters attitudes and beliefs.

Where are ya goin’ Meri?

Well…Im kinda fellin’ like this whole diabetic life is a bit like LOST. What does it all mean? Were we brought to this point for a purpose? Is it all just dumb luck?

We were all wrecked here, right? We were planning to go to freakin’ Italy so to speak…and ended up nose diving into this LOST world. We have been stranded with a community of people that we wouldn’t have given a second look to, and yet they have become our best allies…The people we rely on to get us through the times when the smoke monsters spread confusion. We are finding we NEED each other. And in the process we are realizing we would have missed out on all of this if we were not stranded on this island in the first place. There are the “Others” of the Type 2 community. They are muddling along with us…their experiences here somewhat different than ours…but at the same time, they are on the same cruddy island living with very similar living conditions.

If diabetes never happened I wouldn’t be here. I would be living my life in a different place mentally all together…with a different perspective for sure.

But would that perspective be a better one?

The characters on LOST this season are in the process of finding out which would be better…a life where they NEVER landed on the island and NEVER witnessed that trials and horror that existed there, or a life living through the hell on the island, and growing because of it. Loving more. Feeling more. Living more. Each life brought a different set of values and completely different life perspectives. BUT! It is important to point out that both lives have value and both are worth living.

Now I’m going to stop here for a second and ask you t STOP your train of thought. NO! I am not HAPPY that we were wrecked her on Diabetic Island. It is scary here and this life isn’t just affecting me, but my husband and more than anyone, my children. But if my family HAS to be wrecked…I’m glad it is with good peeps that have my back. Just sayin’. Okey dokey, moving on…

The running theory for the LOST finale, is that the characters will have a choice…they have lived the life with the island, and they have lived a parallel life where the island never existed. Knowing what they have learned, knowing that both lives have molded them into different people…which life will they ultimately choose? I think they will all choose differently. And I think in our community, it would be the same way.

What is your perspective on all of this? I’m sure, just like the characters in LOST, your perspective has changed over time…and will continue to change as you grow, and experience all this island has to offer. The good and the bad. Like LOST, it is up to us to determine what it all means. Dumb luck? A divine hand? I can’t say what way I believe…I think I flip flop between the two. But what I can say is that through all of the trials that the last 12 years have handed out, I have more thoughtful priorities…priorities that I wouldn’t have had if none of this ever happened. Not that I’m happy about it or anything…but it is what it is.

So yeah, I’m LOST. Like the show, there are good days and bad days, there is heartbreak and joy…but an enduring spirit none the less. I go back and forth between science and faith…”When can I get off this flippin' island?” And “Wow, there are some wonderful beaches, how lucky am I to be here!” (Maybe I have some kind of island fever, I dunno.)

Through it all I have to wonder, will my family live here forever? Maybe…so I’m getting comfortable. I’m enjoying the scenery, focusing on the task or the monster that is in front of me at the moment, and in the process, getting to know the wonderful people that are stranded here with me.

Because whether I like it or not…I believe I am a different person for being here. And maybe, just maybe, that isn’t such a bad thing.

Monday, May 3, 2010

The Winners Circle!

Hello my name is Meri, and I am an ellipsis-aholic.

I counted them all…I found myself going through odd phases of cheering for more, and then periods of shame hoping that they would just stop already. I discovered that since my very first blog post, I am steadily using them more and more. My obsession is building…I mean look, I’ve already used them twice in this first paragraph!

But after intense self reflection, (if intense self reflection is eating your weight in Chinese food…) Yes, after deep reflection, I have come to peace with my ellipsis usage. It is part of me…just as much as my flat hair and disproportioned figure.

So without further ado…the total number of times I used the ellipsis, (…) in my past 100 posts is… (don’t you like how I ended that sentence with … just to mess with your heads…)

Is… (HA! I did it again!)

Is…

963!

Winners:

Tracy! She has won the magnet. She didn’t put what prize she wanted so she gets what she gets and she can’t throw a fit.

Jr’s Dad! He has won the Movie…because he said his wife would torture him with it…and since I just celebrated my 17th wedding anniversary this weekend…I am inclined to let her do it. We wives have to get our kicks somehow.

FeltFinland! (Who yes, is in fact really in Finland!) She has won the Medronic skin. Her son hooks up with his new pump this week and it will be fun for him to pick one out!

So the drawing will be for the stationary, which no one wanted. I don’t blame ya, I got it when Boarders Books was going out of business and apparently I don’t want it either. So I’m sending it to you so it isn’t in my house anymore.

I put everyone’s name in a bowl…and my husband picked out the name…and we both agreed that who wins wins and we will be 100% honest. You should have heard our discussion; it was like someone was winning a corvette or something...

and the person who won is…

Lora!

So Tracy and Lora, I have your addresses from our Christmas card list…but Jr’s Dad I will need yours. Please email me: rmmjbls@yahoo.com. Felt Finland…I have your email, so I’ll send word with the details!

Congrats to the winners! But really people, are not we all winners? (hehehe)

Thanks for playing along. :)

Thursday, April 29, 2010

100 days of me.

This post that you are reading right now, this one right here… is my 100th post! I’m not sure if this is THAT big of a milestone or not…but I do think it is something fun to blog about. It’s my blog…my prerogative, I can write about ANYTHING I want to!

So how to commemorate such an occasion???

By diving into the depths of traditional blog culture and doing a GIVE AWAY BABY!!!

I mean really, you have put up with me this long! My long posts, my bad sense of humor, my overuse of the words ‘seriously’ and ‘awesomeness,’ my terrible spelling, (hello ASSES instead of ASSESS!) And not to forget my love of the infamous dot dot dot, (…)

Do you not deserve a little something for your kindness? Do you not YEARN for a little piece of me to hold on to? Ok, it’s ok if you answered no to the second question, but really…I know you want something for free…it is engraved in our genetic makeup!

So how to work all of this?

I have gone back and read ALL 100 of my posts and actually counted how many times I used these … dot dot dot. (Which by the way is called an ELLIPSIS thank you very much Wikipedia!) I want you to make an educated guess of how many times I’ve used said ellipsis in my last 100 posts, and then go ahead and type your guess in the comments. The three closest answers will receive one of these lovely prizes!!

A magnet that I bought the other day that made me smile.


A coupon for a free skin for a Minimed pump.


This super cute stationary and Mom OrganizHer.


And last, but not least, my favorite movie, The Princess Bride.


I know, AMAZING prizes, right? Haha. And yes, I AM aware that there are 4 prizes, but one will be reserved for a simple drawing where everyone will have an equal chance. (Because I always lose at guessing games, and this is my give away, my rules!) Which prize will that be? I don’t know…I’m making this up as I go along!

Rules: I will accept comments/guesses until midnight, Saturday May 1.

If you would like to mention your favorite prize (And how you’ll do that, I have no idea, they are all SOOO AMAZING!) priority will be given to the person who had the best guess. Please also let me know if you have a minimed pump!!

Also, I don’t care if this is the first time reading my blog, or if you live in another country, or if you are not a family that lives with diabetes! If you want to enter and show me some love, I will get the prize to you! No worries about the shipping! Sure I might have to send it on a boat/barge, and it might take 4 months to get to you…but I’ll get it to you! Also, Facebook Peeps, you can leave a message on this link on Facebook instead of here if you don't have a google account.

Good luck to all, and thank you again for listening to me, understanding me, and more than anything telling me that I am WAY more wonderful than I actually am!!

Love and hugs! Here is to the next 100 posts!

Tuesday, April 27, 2010

Rookie Mistake.

Last night I stayed up until 10:30. My husband usually tests the boys at 10 before we go to bed, but he had to go to work in the wee hours of Tuesday morning, so he left the task to me.

Big deal, right? Mom is in charge...she’s a pro…what ever could go wrong?

So like I said before…it was 10:30 before I realized I was a half hour late checking sugars. (In my defense, it was a really good episode of Castle and I was enjoying the quietness of the house.)

So I walked into the boys’ room and saw Lawton, Out. Like. A. Light. Never a good sign. If there was a problem, he was not going to alert me to it. Usually he is a very light sleeper and greets me when I check the boys. But once in awhile he is down for the count. In this case he had a long day outside enjoying the sun and was now drooling on his bed, dreaming of tug o wars and breakfast I am sure.

I checked B-106, a little too low for him.

I checked J-152, a little too high for him.

I checked L- 25.

FREAK OUT TIME.

I try apple juice…too cold…a couple sips, he no likey. He ate half a glucose tab and the other half he just moved to the side of his cheek…he had NO interest in eating it. I tried to talk him into it, I told him it was a new candy and that I stole it from B, but he just pushed it out with his tongue.

OK, so on to plan B. (Not to be confused with my son, B.)

I ripped open the cupboards…and found YOGO’s…his favorite low snack. I fed him an entire pack and he started to come to. I carried him to the couch, (which was NOT EASY, the kid is made of cement,) and with lots of kisses and talking, I got him to finish the juice. As we walked back to bed he was shaking/shivering.

“Momma, can I please have more Yogo’s?”

That voice. That little sweet voice. “Dang straight you can have more Yogo’s!”

That was 45 carbs I put into that boy in 15 minutes. Subsequent tests within the next 10 minutes read 56, 69, 88.

After the 88 I was feeling a little better and went to the monitor. It was all such a blur I wanted to see what his initial blood sugar was exactly.

52.

52?

Fifty-flippin-two???

Turns out, I was holding the meter upside down when I checked him originally.
52…still sucky…but not 25. Not anywhere near the panicky attack of 25.

Stupid One Touch Mini. Your green-ness is uber cool…but your design is not conducive for blurry eyed mothers who check their children’s blood sugars at night by the sliver of light that washes in from the kitchen.

Alright, so it was a tad my fault…a bit of a Rookie mistake for sure.

2am check revealed a 250 blood sugar. I guess it could have been worse. But there was no way, after that freak-out-worry-attack I had, that I was going to correct for any of those 45 carbs I coerced into his body. I may have gone to bed shaky and with a few extra grey hairs, but L was safe and sound, fast asleep. And keeping it that way was the most important thing.

So in conclusion, I would like to submit:

Defense Exhibit A


Defense Exhibit B


Now come on…does it, or does it not say 25???

If this went to a jury, I think I would win. Hands. Down.

Friday, April 23, 2010

Pump Parade: Medronic MiniMed Paradigm

After my post, “You Say Tomato, I say Pump”, I planned on another post titled: “You say Potato, I say MiniMed.” (Come on…It’s a little clever, right??) But instead I came up with what I think is a brilliant idea…THE PUMP PARADE!!! I get so many questions about our pump and why we chose it, it came to me that I should post about the many reasons we went the way we did. Information is power baby!

But in the interest of fairness, and honest curiosity, I asked two of my lovely friends if they would post why they chose their pumps. Today Hallie is posting on the Animas Ping and Laura is posting on the OmniPod! For those who are curious…I hope these posts answer questions for you and take the mystery out of pumps and how they work.

Hooray!! A Parade!!

So join me for the fanfare, because I’m ready to march march march!

Many choose the OmniPod because it is tubeless. (Awesomeness!) And many choose Animas Ping because of its remote. (So Cool!) What would compel someone to choose MiniMed?

Four words.

Easy. Peasy. Lemon. Squeezy.

It is just so simple to use. Very few button presses leads to less frustration and days added to your life. In the interest of full disclosure, we had an Animas pump for about 3 years. It was the same pump as the ping, but without the remote. Any pump is brilliant…and I’m not going to go into why we choose MiniMed over Animas…but I will say the most compelling reason for making the full on change to MiniMed, was ease of use.

So without further ado, I’m going to drive my point home and show you two videos featuring two amazing boys that I get to call mine. All my boys could bolus themselves by 5 years old. It is so nice just to tell them what to do…and know they can do it! With added safty features, like the pump always keeping tabs on insulin on board, I don't have to worry too much of the boys stacking insulin.

Now prepare yourself...you are going to hear my voice now...shattering any and all thoughts of normalcy that you have hereto before thought of me. (Who am I kidding, you all know I'm not normal...)





Hello adorableness!! On the front of the pump there are also two big arrows. You can set those arrows to whatever insulin amount you would like. I have B's set to 0.5 units of insulin, and I have L's set at 0.1 units. If we are on the go, and I want to give B a quick unit of insulin before he jumps into his snack all he has to do is push the arrow up twice and press act. It's called an easy bolus, and I LOVE. IT.

One of the questions I get most often is how do my boys bathe with a pump that is not waterproof. (It can get wet…trust me…it can get drenched…but it is not under warranty if it stops working because of damage from water.) SOOOOO we take it off when they shower or bath, or swim. It’s so easy, but since there is a lot of curiosity of how…here you go…my big J…



I love turning the basal down…I love not ALWAYS having to feed the boys in the wee hours of the morning. Each situation is unique, and for sure there are many instances where food is best. But this technique, when appropriate, is quick and easy. (Am I driving home the point that I am all about easy??)

My last two videos are of my sweet husband doing a set change. They showcase the a BIG reason why we love this pump. J has even learned how to do it. He puts it all together, but still prefers my husband to do the actual insertion.



Ok, so I said L's real name in there...let's just pretend you never heard it...and do me a favor and forget it....riiiiiiight now! And NO, you don't need to go back and listen to it again if you missed it...watch the next video instead...



OK...my husband can do this in his sleep. He has done it SO many times it's like brushing his teeth, he doesn't even have to think about it. When you do it for the first time it is going to take you a lot longer because you are going to have to actually think about what you are doing, but in time...it will be just as easy for you.

Another reason we love MiniMed is the Continuous glucose monitor that works with it. It is a separate site insertion…but it is wireless and “speaks” directly to the pumps. Graphs on the pump screen show trends…and arrows show if blood sugars are going up or down. Our CGM has been a dream!

MiniMed has just launched its brand spankin new pump called the Revel. And to my delight…Diabetes Mine has JUST posted a little bit about it! Please follow THIS link to read more about it if you’d like. But the main thing that I think my readers would find most important is that it has the smaller basal rates like the Animas does, AND when connected to the CGM it will now give you predictive alerts…telling you that you will be low soon…or high soon. Really cool!

The last thing I want to tell you all about is the customer service. They are there 24/7 and awesomely fast in responding to our needs! A little example…Last year, on a Friday at 8:00pm, one of the boys pumps stopped working properly. One call and we had a new pump on our doorstep before 11:00am the next morning. What a relief that they had our back! What a relief that I can call for any reason and they act like I am their most important call of the day. (Nope, I haven’t been paid one red cent to write any of this.)

I think I feel so strongly about it because I depend on it to keep my boys alive…and it is doing a dang good job of it. It is reliable…and it has people behind it who care.

And it’s easy to use. (hehehe I had to say it one more time. :)

So I’m going to end now. And remind you to follow the parade over to Hallie…to learn more about the Animas Ping. And over to Laura…to learn more about the OmniPod.

Now go on…get outta here! Learn something! And tell them Meri sent you!

(Reminder: I’m not a doctor, just a D Mom. Please talk to your doctor…or better yet, your Endo, if you would like to try some of the techniques you read about in this post.)

Tuesday, April 20, 2010

A post title without a swear word.

(I couldn't think of a title for this post that did not contain a swear word. So I am generically entering the above title to protect the meek and mild.)

If it were physically possible for a brain to explode from sheer anguish…

OR, if it wasn’t just a saying, but true to life that a heart could explode from worry…

Last night…

I would have been found on my living room floor in pieces.

Literally.

We haven’t had a night like that…I don’t know…ever.

We were on in a 400 story building going up on the diabetes elevator, and someone thought it would be funny to press EVERY button for EVERY floor. Blood sugars had to go up all night long. No matter what we did, we could not come down. We were stuck…and we didn’t even have any crappy elevator music to calm us down.

Let me just tell you…all three were out of whack. ALL. THREE. Even B. B is never out of whack! He is my predictable one. He is my safe diabetes place. And to throw it in my face more, he was the one in the worst shape last night too.

We did all the trouble shooting. We changed sets…we changed more sets. We did system checks…We tried everything except a new bottle of insulin.

WAIT! I’m sure you are all like, “Meri! Why on God’s green earth did you not open a new bottle of insulin???”

Because…we didn’t have any more. We were out. (See how easily I typed that...like OH, Silly! We just didn't HAVE anymore insulin! It is so absurd I can't even wrap my head around it.) We filled all the reservoirs the night before. That was the end of it. We had full reservoirs of insulin…insulin that apparently had lost its potency.

Does Kaiser have a 24 hour pharmacy open within a 100 mile radius of my home? No.

Is there ANY 24 hour pharmacy within 60 miles of my home? No.

Was I willing to pay full sticker price for a brand spankin new bottle of insulin? Yes.

Can you just buy insulin off the shelf? I don’t know. I never found a pharmacy that I could ask.

All I know is we rode the highway to hell last night, and it was every bit as wonderful as the Highways name implies.

After blousing EVERY KID at 10, 12, 1:30, 2, 2:45, 4:00 and 5:00…we finally got them all down to wake up at 79, 95, and 150. And when they woke up it was like nothing happened. They were honestly smiley, happy, energetic kids bouncing off the walls, ready for their day. I was going to keep them home, but they wanted to go. “Why?” They said, “We feel fine!” So they get to go, and if they call me with high numbers at snack recess…it is straight home. By then I will have brand new insulin in my fridge and all will be right with the world again.

Just to put a cherry on top of all of this…last night my husband was supposed to wake up and go to work at 3:00am. I had fallen into bed at 2:45. His alarm went off for almost an hour and neither of us heard it. He woke up an hour late and in his haste, got a speeding ticket on the freeway.

Gee, could this day get any freakin better??? Best day ever for sure! :P~~~~~~~~~~~~~~

It has been years since I cried about diabetes. I really don’t let it get to me. It is self protection. Don’t let diabetes win. If there is a problem, fix it.

But last night…in its entirety, was cry-worthy. And I cried. Long and hard. Last night we had a storm come in…as I laid there in bed listening to the rain drops, clutching my Kleenex and hiccuping through my tears, for a moment, it felt like the earth was crying with me. Like all of the D mothers and fathers in the world were there with me…crying too.

Hating what this does to our children.

So I’m picking up the pieces of my exploded self and moving on. I will go to the pharmacy and get insulin. I will call my doctor and tell her I need a bigger prescription than what we are getting. We are down to the wire every month, and it isn’t ok. I will hug my husband even though I am furious we have a $400 ticket to pay. I will take Advil for my cry headache. And I will say my prayers, thanking the Lord that even after the worst of nights, my boys could run out the door this morning…vibrant and happy.

(Please excuse all the grammer and punctuation mistakes, I am writing this post on empty, it's a miracle I got down what I did.)

Wednesday, April 14, 2010

You say tomato...I say pump...

Let me tell ya, I don’t pretend to know everything….even though sometimes I am convinced I do. There is some bit of logic that hangs around that tells me…”Meri, you still have a load to learn.” As a mom, I like to think I know more than my kids, but every day they surprise me. Every day they come up with a something that throws me for a loop, which makes me stop and say, “Whoa! That was crazy insightful!” They are rock stars like that…

(I am getting off topic…I’m going to reign myself in now.)

Any hoo…I am not all knowing. Do I know more than a lot of people about diabetes? Hell yeah!!

Do I know more than everyone? Hell no!!

But what I do know…what I promise I KNOW with every fiber of my being…is I do know how to handle my boys highs and lows. I know my boys reactions to foods better than everyone other than the man upstairs. I know what foods work best for lows…I know the best corrections to use at certain times of the day…I know so many tiny seemingly insignificant details that it would drive a normal person mad. (Heck, I’m halfway to Madville!)

I know MY boys. Doesn’t mean I’m always right…but I am the BEST person to make decisions on their behalf.

That being said, just because pudding at midnight works for my youngest like a magic doesn’t mean it will work for your kiddo. Just because I turn off my youngest pump for an hour when his blood sugar is 100 at 10:00pm, doesn’t mean doing that for your child will yield the same results.

That is the thing...diabetic dilemmas can be handled a slew of different ways. Just because I am convinced that bananas at 8:00pm are the miracle answer to nighttime lows…doesn’t mean that will work for everyone else. (Come on…I have a million and one different examples…you’re not getting sick of them already???)

That is why it is SOOOO important in our community to say what you would do, and do it in a way that lets that person know, “If you don’t do it my way, it doesn’t mean you are doing it the wrong way.” Because…THERE ARE MANY DIFFERENT WAYS! Especially with diabetes. I think our community is mostly on board with this. Everyone has always been very kind with their comments, and have been as helpful as they can be without stepping on toes…

Through blog comments and observations it boggles my mind the things different people come up with! I will be sure I am handling things correctly when someone will come along with a completely new approach! I love hearing everyone’s input! I love hearing what others would do if they were in my situation! Hey, just recently I heard that upping a basal rate for 8 hours after pizza can help the “after pizza hurricane” go away. (Basel rates!) It might not work for my kids…but heck, it is worth a try. And I choose to give it a try…

But, if I didn’t, would that make me a bad mother?

Which brings me to my point, (I know it always takes me FOREVER to get there,) But I am here now, and my intended topic is this…pump pushing. Poor Lora has had me on her case for months. I’ve tried REALLY REALLY hard not to push it on her. Like seriously, I had to make a conscience effort. I KNOW that the pump is easier. I know that living life on your own schedule and not your insulin’s schedule is a blessing. But just because I know this for me…doesn’t mean it is 100% right for her. Only she can tell you if I have pushed too hard…but beyond that…I hope she feels like this is her decision, and not something she HAS to do.

Because I have to continually remind myself that, believe it or not, there are many people in this world on MDI, (multiple daily injections,) and they are thriving.

And when you have been doing MDI for so many years, and your child’s blood sugar numbers are good, there is a comfort in that. There is comfort in knowing what to do at 8:00 at night, when your child is 102…that this many carbs will do the trick of bringing so and so up to where they need to be. Beautiful predictability…it is an awesome thing!

Now look, pump pushing seems like kinda a harsh phrase…but I am sitting her raising my hand straight up in the air as guilty as the rest of the world…I know without a shadow of a doubt that the diabetic community is encouraging others to go on the pump with only love and the best of intentions. We want everyone to feel the weight it took off our shoulders; we want the world to have the ease of use! I honestly want to shout from the rooftops PUMPS ARE THE BEST INVENTION IN THE HISTIORY OF THE WORLD!!!! And I’m not saying that I haven’t done that before. :)

But, and this is a big but…we all started pumps on our own clock…the time in our lives when it made sense to us. Hell, it took 4 years for our endo to convince us to go on. And I resisted, because shots were doing their job…blood sugars were as good as they could be for our toddler…so I fought it like any protective, caring mother would. And one day shots were not working anymore, and I literally gave in. I raised the white flag, and gave up. “Fine, I’ll give the pump a try, but I’ll probably hate it. I don’t like having a constant reminder of my child’s diabetes, but if this is my last resort, I’ll take it.” It was ultimately my choice, or better explained as my rock and my hard place, but after getting used to the pump it was a no brainer for me to have my other two boys put on pumps immediately after their diagnosis.

But that was my path to take.

And everyone deserves the freedom to make their own informed decisions.

One of my friends has two boys that are T1. One is on the pump. One is on MDI. If you sat with her and listened to her reasoning, you would agree that their decision was brilliant. The best choice for their family!

So here I sit…conflicted yet resolved. Yes, pumps are the best thing since sliced bread. No, you are not a bad mother (or father) if your child is not on a pump.

That is my crazy brain, and I’m stickin’ to it.

Monday, April 12, 2010

Mommy Growing Pains

Today was the first day back to school from spring break. It was a dismal scene last night as I confirmed that yes, school night bedtime will remain 8:30pm.

Today was a wonderful day. No extreme lows after basal changes made during the break, and my boys remembered to call me, which is no small miracle in itself…

Which leads me to why I’m blogging…

I was so happy to see the boys after school! I had a super day, and I was eager to hear how their first day back went. One by one I gave the boys the once over with questions and observations about dirty hands and homework habits.

When I got to B, I got a little more than I bargained for.

A little background first. My boys do not go to the school we are supposed to go to. They go to another school across town for two very good reasons. 1) It is a better school. 2) My mother is the yard duty for lunch recess.

Scratch that…my mother USED to be the yard duty at lunch recess. She jumped ship and started working at another school a few weeks ago. Which, really…it is her life...she can work where she wants. EXCEPT! She used to grab B after recess and give him her cell to call me with his lunchtime bg numbers and carb intake. Since she no longer works there, it is up to B to remember to call me on his own.

Which isn’t working out too well. I would say he is 50/50. When he forgets, I have to call the office and have them patch me through to his classroom, which is no biggie, but it does interrupt the class…and it is slightly embarrassing for my Big Boy B.

I even went into the office and asked if they thought the new yard duties would be willing to remind him, and they thought that they would LOVE TO. Except in the week since, they haven’t reminded him once. So I’m back to calling when he forgets.

Alrighty then!! Back to our previously scheduled story!

So I got to B…I said, “B, you were a rock star for remembering to call me today! How in the world did you remember???”

Which received the reply, “Trust me Mom, you DON’T want to know!”

“Oh, but I think I do!”

“Nope, it is a LONG story…trust me, you REALLY don’t want to know.”

(Yes, he is his mother’s son…)

“I’ve got the time, and I would love to hear your LONG story.”

“OK, well, my teacher put a post-it note on my desk that said, ‘Don’t forget to call your mom!’ It was the most embarrassing thing that has ever happened to me in my life!”

(Again, he has flair, he is from my loins…)

“How was that embarrassing?“

“HELLO!!! A bunch of people laughed at me…because I had to call MY MOMMY!”

So, as a mother I want to fix this, right? I work through it with him, problem solving…

“Maybe it can say, CYM…for, Call your mom…it’ll be code, and only you will know.”

“Won’t work mom…everyone will want to know what it means.”

“Tell them it means put Candy in Your Mouth!”

(He rolled his eyes at this point…do you blame him?)

“Maybe it can just say, don’t forget to call, and leave me out of it.” But before I finished my sentence he already had the answer.

“I’ll just tell her to write ‘Call your Dad’ Instead of Mom. Easy! I’ll tell her tomorrow.”

And he happily skipped away.

Apparently, it is ok to call your Dad, and not your Mom.

Apparently my 8 year old is going on 13.

It always happens, it has already happened to me twice before…it is no longer cool to hug when I pick up from school…it is no longer cool to acknowledge your Mom’s existence in the school breezeways…

But when it does happen, I’m never prepared.

He was right…I didn’t want to know.

Thursday, April 8, 2010

New Sistah in the House!

I would like to introduce you to our new friend, Connie! Her new blog, Hope and Beginnings can be found HERE.

Read her story sistahs and brothahs, your going to need a Kleenex for this one. She has two little girls with Type 1. They were diagnosed less than a year apart. (Sounds familiar to a lot of us, I know.)

Please go over and give her some of that sunshine you all spread so well! Her little girls are the same ages as many of the D moms in our group!

Introduce yourself, she's a keeper. :)

Tuesday, April 6, 2010

Reenactment (The Sequel)

Scene: 11:50 am, Car, driving to the movie theater.

Players: Three boys and a frazzled mother. (Son #4 chose to sit this movie out.)

Son #1: "What’s for lunch?"

Mom: “Hello! Popcorn! What else do you eat at a movie??”

Son #2: “Popcorn isn’t lunch mom.”

Mom: “Hold it son! If chocolate rabbits are ok for breakfast, popcorn is ok for lunch, I’m calling this one.”

Son #3: “Can we at least get hot dogs at the theater?”

Mom: “Oh sure, I’ll just take $50.00 out of your savings account and that should cover it.”

Son #1: “Nice try mom, we know you are kidding.”

Mom: “A mom’s gotta try…”

Scene: Waiting in line for tickets, Mom is horrified as she glances at Son #3, also known as B.

Mom: “What the heck happened B! Your pump tubing is flapping in the wind…when did it get ripped out of your pump??”

Son #3: “Seriously Mom, if I knew, I would have told you.”

Mom: “UHG! I’ll MacGyver it…We’ll work it out.”

Son #2: “What is MacGyver?”

Mom: “Not what…who. He is a really smart man…almost as smart at me.”

Scene: Sitting inside the theater, waiting for the movie to start. Boys balancing popcorn on their knees, hands full of hot dogs and napkins.

Mom: “J, bolus for the food, and when it is done, give me your pump, I’ll hook up B and give him insulin through the prime so it doesn’t show up on your IOB. B, hand me your pump, I’ll put in your carb and BG amounts so I’ll know how much to give you through J’s pump.”

(Scary thin balding Man sitting in front turns his head, intrigued at the medical/spy-like jargon.)

B, rifles through his pockets. He pauses. He rifles again. He stands, and thrusts his hands down every pocket his shorts have.

Son #3: “Huh, weird, I don’t have my pump, don’t worry, it’s probably at home.” (Nonchalantly sits down and continues to watch previews like it’s no big deal…)

Mom: (Paralyzed in fear…mind racing…’probably??? Probably???’) “How can you just not know where your pump is B? What do you mean probably? Did you take it out of your pocket? Where is it?!!”

Son #3: “I have no idea…it’s probably at home…don’t freak out mom.”

Mom: Freaking out. Pictures of a lone pump sitting on the sidewalk, with young punks walking by picking up the curious purple video game like contraption, flash through her head. $5000 gone. Just gone. “Does anyone have their cell phone? I left mine at home.” (Nope, not one boy has their cell phone.) “I’m going to the car…stay here! Don’t talk to strangers… (Discreetly pointing to scary bald guy in front of them,) Don’t go to the bathroom…I’ll be RIGHT back!”

Scene: In front of the theater. Mom barges through the theater doors, eyes blazing, hair flying, hands in front of her flat with fingers spread, using the spaces between her fingers as virtual magnifying glasses. Walking quickly, scanning, manic…all the way back to the car…looking in gutters, evil-eyeing the punks…ready to cry…opening the door…

It is there.

On the seat.

The pump.

Probable victim of a seat belt.

(Big fat sigh of relief.)

Scene: Movie theater…again.

Pump has bolused son #2 and son #3 and now is back in son #2’s pocket.

Crisis averted, movie thoroughly enjoyed…

Just another Pancreatical day. (Pancreatic/hysterical=my new favorite word.)

Wednesday, March 31, 2010

Sometimes...

Sometimes at night, when the alarm goes off…I have a mini fit. I thrash my legs and moan like an 8 year old tasked to do the stupidest of chores. I am freakin’ tired. I roll out of bed walking back-bent-arms-hanging, channeling all my anger to the Legos on the floor, wondering when, if ever, I will get a good night’s sleep. Once I get to the boys though, my heart usually softens. Their sweet faces calm my shaking hands and my selfishness turns to concern as I check each boy and assess their situation. But when I get back to my bed, I fall in like a dead body; face first…KERPLAT…on to my pillow. Wondering if I’ll be able to fall back to sleep, angry at the exhaustion that has taken over my body. Sometimes.

But most of the time, I just hop out of bed and check. No biggie. I’m not angry, or tired, or anything. I do the deed and go back to bed. Most of the time it is just a simple correction or a little banana or pudding to get things back to where they need to be. I climb back into bed and fall asleep before my head hits the pillow. Done and done.

Sometimes I question myself. I’ll give the boys breakfast insulin and send them to school wondering if they will be ok today. Because sometimes I don’t do what the pump tells me to do. Sometimes I go rogue. I know that J has track, so I’ll scale back his insulin. I know that B has called me the last few days with higher numbers, so I give him a bit extra. I know that L has needed an extra snack for a week, so I give him less insulin. So I’m guessing. And sometimes when I guess…my entire body fills with worry sand, and I feel like I am 200 pounds heavier. On these days I feel clumsier in both mind and body, and I can’t think straight. And I pretend that I’m not worrying…I tell myself over and over and over that they will be ok. Sometimes.

But most of the time, I give insulin and I don’t worry. We have done this everyday for forever, and everything will be ok. And if it is not ok, then there was nothing more I could do. Most of the time I am at peace with my decisions. I know that my guesses are educated guesses. I live and breathe diabetes. I am not perfect…but I am capable. Most of the time. Done and done.

Sometimes, I’ll look at a pile of bloody test strips on the dresser, (aftermath from a long night,) and I almost throw up a little in my mouth. It is the grizzly reality of our life. Sometimes, there can be 20 test strips lying on the boy’s dresser from the evening before and a couple checks through the night. I pick each one up to throw in the garbage. It hurts my heart as some of them stick to the dresser. Tears come as I wonder if this will always be our reality. Wondering if there will ever be a cure. The image throws me…and validates all my anger towards this disease. I think of their callused fingers and I want to roar like a mother lion that is protecting her young. Sometimes.

But most of the time, I’ll clean up the strips and disinfect the area like I always do and it is the most normal of things. It is not big deal. Test strips are nothing new. Hell…they are EVERYWHERE. Normally the strips go straight to the garbage or in a cup I keep next to their supplies. I am thankful for being able to test. This instrument is fairly new in this world. How blessed am I to know what to do at any time of day just with a poke of the finger? I thank the Lord for that monitor. Most of the time. Done and done.

Sometimes I let my brain go to that dark place. The place where the seriousness of this disease is magnified and made uber clear to every one of my mommy senses. Sometimes, like this week, I hear the stories of children dying in their sleep from Diabetes and I have what I call, “a silent freak out.” I don’t talk about it. I pretend I am not worrying about it. But it is there in my mind. So when something else comes up that is frustrating, I lose it. I lose it over the littlest of things. Not because of the little thing, but because of this secret worry that has burrowed like a mole deep into my head and is planning to hibernate there for the winter. There is this background worry that affects every aspect of my life. It defines me, it puts me on edge. And at these times, I hate diabetes. Sometimes.

But most of the time, I am grateful. I see the blessings right in front of me. They are vibrant, smart, and amazing. They can do anything. Nothing can stop them from achieving their dreams…not even diabetes. I am grateful that they are alive…that they don’t live their lives in a hospital. That diabetes has made them stronger, more empathetic people. What doesn’t kill us makes us stronger. We are a close, united family partly to do with diabetes. We are blessed daily with technology that makes this disease manageable. We are a family that loves each other, and when it all comes down to it…isn’t that all that is important?

Yes, sometimes I am an emotional wreck. Thankfully, most of the time…I am Ok. That is why I am the Jekyll and Hyde of the blogging world. One minute I am preaching how manageable diabetes is, and that it gets easier, and that newly diagnosed families will adjust to the craziness of it all…and the next minute I am heartbroken…scared and unsure of myself.

I had a friend tell me once I certainly must need therapy with all I have on my plate. That may be so. But I think for now, I won’t take that path simply because “most of the time” I’m still Ok. And the “sometimes” that I am not…well…those times don’t last long. Those sometimes moments are the reality of what this disease dishes out. Diabetes isn’t going anywhere anytime soon. I accept that. And I always know that that through the rain clouds the sun is always there. We just need to be patient…the sun will make itself known eventually. Sure, some storms last longer than others. But that is with every aspect of life.

When we were new to this life…when J was just a baby… things were different. The bad times seemed like they were most of the time. And it seems that only sometimes we got a taste of what was “normal.” As time passed…the two switched places. I often tell newly diagnosed families that things will get easier. It sucks that easier doesn’t mean easy…but it does mean life will be better than it is now. So much better that you will feel normal again. You WILL feel alive again.

I get that normalcy most of the time.

And the sometimes that I don't...well, I blog. And it makes me feel better. :)

Wednesday, March 24, 2010

Diabetic Ingenuity

My 8 year old B grabbed my hand last night and declared he had fixed a long standing problem in our home.

The pitcher that we use for our Sugar Free Cool-aid/Crystal Light has a rip in the spout. When we pour the drink...often red, or pink...it dribbles down the side of the pitcher and splats onto the counter top. My boys know this annoys me to no end. They are required to use 409 every time they pour a drink to clean away the stain that is left.



Should I get a new pitcher...of course!

But it always seems to evade my shopping list and has just stuck around for the last few months as a thorn in my side.

But back to earlier...B had declared the problem fixed...

He took two new test strips and peeled them apart, which any diabetic kid worth their salt knows this turns the strip into a sticker. He then bandaged up the tear in the pitcher and Ta Dah!!!!!!!!



He was so proud of his smartness!!! But alas...they had to come off. If one of them un-stuck and fell into a drink, and then someone swallowed it, well...not good.

But Bravo anyway! His genius shines! I wonder if Einstein had such ingenuity when he was 8 years old?

Monday, March 22, 2010

The Ol' Switch-A-Roo

We have three.

Three boys who have Type 1 Diabetes.

Three pumps that deliver insulin.

Three of each.

Each boy has their own color pump. J’s is blue, B’s is purple and L’s is…well Zebra. We got all the boys stickers that go onto their pump to keep ourselves from mixing them up. J and B ripped theirs off within a month…L kept his zebra stripes, and is still very proud of them. Needless to say, we never mix up L’s pump with anyone else. L is the Zebra…my other boys wouldn’t be caught dead with zebra stripes.

But the blue and the purple…well, they are not as simple.

It’s a dark purple. For sure not blue, but not obviously bright or anything, and when you are doing set changes in the middle of the night, they look almost identical.

(You already know where I am going with this…right?)

So the other night it happened. Ryan set up the pumps, refilled with insulin and put them on the respective boys. And when I went to calibrate J’s new CGM with his pump, I was horrified to find that it wasn’t working. There was nothing there that indicated that the CGM was communicating with the pump. Even worse, when I went into J’s system to “find sensor” it didn’t show that the sensor feature was even on! What happened? Do we have to redo all of the settings every time we change a set?? It was like the twilight zone! A bad dream, that was real! Ryan and I puzzled for awhile. I was gobsmacked! How in the freakin’ world could this have happened??

It took awhile for us to figure out that Ryan had put B’s pump on J. Too long if you ask me. In hindsight I feel like what my hubby and I call a DOPUS. It’s kinda a mix of Dope and ignoramus. It was a real wake- up call because A) J gets twice the insulin B does (Hello scary, B’s blood sugar would have dropped like a brick in no time!!) and B) B get’s half the insulin of J. (Hello scary, J would have had so little insulin, his numbers would have been THROUGH THE ROOF in the morning!!)

No, it’s not the first time it’s happened. After bath and showers, they have put the wrong ones on themselves. It’s not completely problematic because it happens very rarely.

But it only takes ONCE to make a mess of things.

ONE TIME.

I think that is one of the greatest arguments of why diabetes sucks so much. There isn’t leverage for forgetfulness. You can’t afford to “forget” to bolus after a meal. You can’t afford to “forget” to check blood sugars. You can’t afford to “forget” to correct a high blood sugar. You can’t “forget” that J wears the blue pump and B wears the purple one!

No forgetting allowed!

EVER!!!!!!!!!!!!

That is why our brains are running a mile a minute, all the time, 24/7.
And that is why when we don’t have a diabetic child with you, your brain jumps into some kind of tailspin of emotions wondering where all the thinking has gone. Guilt for not thinking about it. Confusion as to why you stopped thinking about it.

Our brain gets tripped up going from 100 miles an hour to 0 miles an hour.

Hard to relax when you don’t HAVE to think about diabetes. But really, when do we NOT get to think about it?? Even when the boys are at school, they are calling me with their numbers and carb amounts, alerting me to any extra exercise and such. When they are not with me, I am worrying…I am THINKING ABOUT IT!!!

The only time my brain really gets a break, and no it isn’t at night when normal people sleep…HECK NO! It is when I go out on a date with my hubby, and my sister in law babysits.

She knows what to do. I TRUST her. I can honestly throw the kids out of the car and know they are safe and their diabetes is handled.

It is a gift. The gift to forget.

My husband and I didn’t get to go out this weekend. Trust me, my brain feels it. When you run at a 100 miles an hour for such a long stretch, your brain runs out of fluid, and it still continues to run even though smoke is coming out of your ears and the cogs are screeching so loud you just might think you are going to explode.


Sometimes I wish I could pull the ol’ switch-a-roo with someone else’s brain.
“OPPS! I accidentally grabbed your brain by mistake; I’ll give it back to you on Wednesday…”

Because the thing is, I am more than a pancreas. I am human, and I have normal everyday human things to worry about too. As parents of diabetics, we can just as easily overload on diabetes, as we can on every other aspect of life. And when the two or more of your cogs overload at the same time…well…I guess you get a blog post that ends abruptly and looks a lot like this one.

Friday, March 19, 2010

Second Verse, Same as the First. :)

It must be our lucky weekend, because I have another shiny new D Mom blogger to introduce to you all! Her name is April and her family actually resides here in my hometown! WOO HOO!

Her son "T" was diagnosed just last month, a week before his 13th birthday.

Won't you all show her some good neighbor hospitality and stop by her brand new blog to say hello?

You can find her at
http://thediabeteslearningcurve.blogspot.com/

Welcome April!!

Thursday, March 18, 2010

A New Extra Sweet Friend :)

Please pop over and say hello to our new friend on the block, Amanda!

Her 5 year old daughter Emma was diagnosed last year THE DAY AFTER Amanda had her third child! Emma also has celiac.

Her blog is at
http://extrasweetgirl.blogspot.com/

Welcome Amanda! We are happy when a new D Mom blogs, we know how much it helps our hearts...we hope it is balm for yours!

Wednesday, March 17, 2010

My swelling/hurty brain

Last night I wanted to throw my brain under a bus. No kidding, I was peering out the window hoping for the freak chance a bus would drive by. I wasn’t picky on the type of bus…any ol bus would have done…and once I saw it I would have tossed my swelling/hurty brain right out the window under its big fat wheels.

Dramatic much?

Before you go worrying about me, I did recover. Nothing a bit of chocolate and a new episode of Lost couldn’t fix.

But I digress. I suppose I should start from the beginning. The beginning that begins with the CGM trainer coming to our house to train us. (I LOVE how stupid that last sentence was!)

YES!! We have received our very own shiny BE-A-U-TIFUL Continuous Glucose Monitor. Hooray!!

We got it a couple weeks ago, but I didn’t put it on J right away. I wasn’t overly impressed with the trial we had last month. The Continuous Glucose numbers were not even close to his actual Blood Glucose numbers. I was all kinds of hesitant after the trial, but decided that a CGM was better than no CGM. And if nothing else, it could spot the trends of his days.

Well this trainer woman quelled all of my CGM fears. She swooped in yesterday and literally saved the day. She was amazing! She was truthful! She showed me how to work with it correctly…and I am NOT exaggerating when I say his Blood Glucose readings and his Continuous Glucose readings have been literally, like one point off from each other since we were up and running yesterday. For example, this morning it said he was 112. His blood sugar reading was 111.

HOLLA!

I’m trying not to get my hopes up…but whatever…I probably will anyway, because that is how I roll.

You’re probably reading this and wondering…”Meri, why would all of this greatness make you want to throw your brain under a bus???” And I would reply…”Keep reading friend, keep reading.”

So before our trainer left, she mentioned the fact that we can download the boys pump information online, as well as the information received by J’s new CGM. We just needed to buy this expensive receiver called a “CareLink.”

I went to my diabetes closet, because yes, we require a closet for our supplies, and fished out a CareLink receiver that was sent to us free at least a year ago. Our trainer was thrilled! “Set it up, and you will be getting J’s basals into shape in no time!” SO since she was so enthusiastic about it, and since our nurse at the Endo has been begging me to get this set up for a good year now…I decided to bite the bullet and set it up.

(This is the part where my brain swells.)

So right away I had issues getting started. So I called Minimed and after holding for a good 40 minutes I got this INCREDIBLY nice man who was willing to spend hours with me getting this set up. It took awhile, but mission accomplished. All three pumps were set up online and all the information inside them from the last three months was there before me in graph, chart, list and every other informational form you can imagine.

And the charts I saw from the last few weeks were BRAIN BOGGLING! It gave a percentage of all the blood sugars that were in range, and all that were not. And it wasn’t pretty. Page after page of numbers and information!!!

Enough information to put a woman who lives on the edge…over said edge.

Let me tell you, sometimes too much information is a bad thing. A really bad thing.

Some of you reading this may think you really would like to know that information because…

“LALALALALALALALALA” (fingers in my ears I am not listening you!) BECAUSE, trust me…you do not want to know!

I was so horrified, I had all the boys come to me one by one and I upped all of their basal rates for every time of day, except when they were at school. (Which resulted in B and L going low last night, which thankfully Lawton awoke me for.)

So after I changed everyone’s pump settings my husband could see the muscle spasm above my right eye, so he went out to get some chocolate to calm my brain. (He is a good man…but when he was teasing me late into the night I threatened to expose his evil ways on my blog. I told him everyone thinks he’s wonderful…I could change that in an instant! He wasn’t afraid. He knows I adore him. But it was fun threatening him with blogger blackmail anyway.)

By this morning though, I have been able to completly process all the imformation that my brain indulged in last night, and now I am feeling better. Today is a NEW day!! Onward and upward!

So here is, the end of my post. I just read the entire thing back to myself and realize I sound a little mad, like Johnny Depp Mad Hatter Mad…but I’m ok with that…because A) I think when it comes down to it, we’re all a little crazy, and B) Who wouldn’t want to be put in the same column as Johnny Depp?

Monday, March 15, 2010

My friend has lost her marbles!


My friend has lost her marbles
Won’t you take the time to look?

My friend has lost her marbles
It happened when her world was shook.

The rocking of her brain caused them to roll around,
And when she needed them the most, they were nowhere to be found.

Because they are smooth orbs, marbles can be tricky to keep in check,
They roll around your life and slip away when you’re a wreck.

She has looked in the shower where she cries from time to time,
And searched fervently in her bed where worries rock her mind.

She looked in the car where she’s always in a rush.
She even searched in places that would make a momma blush.

She tried by the scale where she weighs all of her son’s food,
(Because calculating carbs always puts her in a mood.)

She looked by the blood sugar monitor and the Ketone strips,
But when the buggers were not there, curse words crossed her lips.

Under her son’s mattress where she kneels to check each night,
There wasn’t a marble there, not a one in sight.

In a last ditch attempt she checked the Frigidaire,
It’s where she keeps the insulin, but alas they were not there.

It’s no fun to lose your marbles, trust me friends I know,
For I have lost my marbles, twas many years ago.

It hasn’t been easy to make it through without,
Living a life of worry and fear can fill your mind with doubt.

How can I survive without my marbles dear?
How can I make it through the trials of the year?

After many years of wondering it has finally come to me,
There is a way to cope, a way that sets my worries free.

What is the secret of filling up my mind?
It is putting love in the spaces the marbles left behind.

Love and understanding from those who walk along,
Fill those empty spaces and I don’t even know their gone.

So for my friend who lost her marbles, no worries! Be of good cheer!
I’m here for you always, and happy to lend an ear.

And really, marbles are overrated; their swirls aren’t so renowned,
They’ll never hold a candle to the marble-less friends that I have found!

(For my friend Lora...one of my favorite marble-less peeps. :)

Monday, March 8, 2010

Fun Fundraising, it's worth a try!

I love our dog. He is amazing. ‘Nuff said.

So why wouldn’t I try to raise money so that Dogs4Diabetics could help more people? I didn’t have to pay for Lawton. He was given to us free of charge. I feel some responsibility to share the love.

Last week we had our annual school fundraiser for Dogs4Diabetics at the boys’ elementary school. All the kids were asked to bring in one dollar sometime during the week, and if they did, they could wear their favorite hat to school all day on Friday. As I alluded to in my last post, I spent most of last week in classrooms giving presentations and answering questions about our dog, and about diabetes.

You wouldn’t believe some of the great, thoughtful questions that came from these children’s mouths.

Example: “If your boys forgot to give themselves insulin, they must have a lot of sugar staying in their bodies. How do they feel when this happens? “

You also wouldn’t believe some of the crazy, not so well thought out questions that came from these children’s mouths.

Example: “What would happen if Lawton would die, right here, right now. Would your boys die too?”

Over the past few years, I’ve learned that if I visit a class, and talk with them about what we are raising money for, the class will participate on a MUCH greater scale then those I do not speak to.

So this year I spoke to almost every class.

It was a HUGE success…an entire school of children wearing Disney hats, baseball hats, summer hats, construction hats…

And we raised….

DUM DA DUMMMMMMM!!

$1000.00

NICE!

This is a great fundraiser for your walk team too! Before we got Lawton we had the caps day, but instead it was, “Caps4aCure.” It is really easy to put together. A flyer in the school newsletter. A little spiel at the kid’s assembly. Envelopes with class lists attached, so the teachers can check off who brings in their dollar. Maybe a few classroom presentations. Kids wear their hats….BAM! Done.

(Our family makes dog bone shaped cookies for all the classes that have over 80% participation.)

Kids CAN make a difference. It is empowering. I hear stories every year of kids wanting to use their own dollar, or kids who ask their parents how they can earn more money to donate. The whole experience is so positive for everyone!

Give it a shot!

Thursday, March 4, 2010

Trying to find my auto pilot switch...

I’ve spent the last 4 days talking to classes at the boys’ school about diabetes and service dogs. I had my spiel down pat. I aced the “what is diabetes” lessons for the older kids, and scored when it came to “service dog etiquette” for the younger kids. But in true form…I am completely overwhelmed as I sit here with my thoughts. Speeches about our immune system and information about the body’s ability to make insulin are dancing in my head.

Diabetes overload.

Questions. Sweet beautiful questions from students and teachers who want to know more. Everything we have ever dreamed of. A captive audience who has questions!

Questions I have been waiting for people to ask. But at the same time, questions that have answers I don’t want to think about anymore.

Why?

How?

When?

Will?

What if?


I am overwhelmed friends. I’ve come home from a long day of lectures and I’ve had enough of diabetes. I don’t like thinking this hard about things.

I like to LIVE. Not obsess. And when your mind is stuck skipping like a broken record, diabetes is…diabetes is…diabetes is…You can understand that I just haven’t had it in me to blog.

Which brings me to my next subject. I have been SUCH a downer lately; I just want to slap myself. I know we all need to “lose it” sometimes…but that is not the person I want to be. I want to be positive about things; I want to look at the bright side.

And I do.

I’m just…

Overloaded right now.

So I guess I have to be careful for what I wish for. Because right now I have a school full of teachers and students that have a small idea of what my world is about. And they are feeling for me. And the weight of their knowledge is hanging on my shoulders right now. My life is out there. Explaining our life in simple terms seemed harmless enough…except for the fact that my brain is going to explode.

I need to reboot. I need to trash all the garbage that is going through my head and move on to LIVING again.

Where the hell is my auto-pilot switch????

I don’t want to consciously think about IT anymore!

Actually, right now…I don’t want to think at all anymore.

I want to go to Hawaii. Or Cabo. Or somewhere warm…and sit on the beach…and sleep…for like a month.

I know. Whiner whiner pants on fire. It is what it is.

I am wondering if some of this overwhelmingness (Yes I realize that is a made up word) is due to the fact that I haven’t blogged in almost a week. I'm hoping that now that I have gotten this all down on virtual paper…I’ll be able to get back to normal. Well, my normal anyway.

Not sure how to end this one. So I’ll just say this…

:p~~~~~~~~~~~to brain explosions.

:o) to weekends.

Friday, February 26, 2010

Pulling the break on the runaway train

A couple days ago I hopped aboard the “Woe Is Me Train” and added fuel to its fire so furiously, the train got completely out of control. It screamed down the tracks of my life, and in true dramatic fashion ran straight through my blog yesterday and then full tilt into my husband’s arms at lunch. You should have seen me barrel towards my husband at the restaurant…crazy hair flying in the wind, blood shot eyes…the only thing I contained were my hands, that a few minutes earlier waved like a Muppet over my head.

My husband, alarmed at the sight, asked me what was wrong.

As I poured out my heart a mile a minute…recounting all the words of my blog yesterday, referring regularly to the post on DiabetesMine, and using the words “High on Freedom” in every other sentence…my husband did what every gentleman would do…

He pulled the emergency break to stop the train and then carefully step by step helped me off until I was on solid ground again.

After listening to my rant, he sat thoughtfully in his seat for a moment before he offered this:

“I think you may have something there,” he said. “But I think that is just a small part of it all…I really think he is just lazy.”

I tried to explain to him that is what all the parents in the comment section thought, but really it was their childs bid for freedom from their diabetic lives. He didn’t totally dismiss it, but he insisted he knew something I didn’t. He insisted J was the mirror image of him when he was that age, and he knew some of what was going on in J’s head.

I value his opinion. I know men think differently than woman. So I let him plead his case.

He presented the facts.

* J checks his sugar every morning and boluses for breakfast on his own. He never forgets.

* We have told J that he only needs to check his sugar once before lunch at school.
For whatever reason, J ignores his snack alarm, and doesn’t test sometimes. (He was determined to get to the bottom of this one.)

* J boluses for his snack every day.

* J calls me after he has eaten his lunch every day and even checks his sugar then when he realizes he forgot to earlier. (Which if course, this number is of no help to me, but it is effort none the less.)

* J always tells me the truth when he doesn’t test. He isn’t lying to us.

* J will check when he feels low. J called us twice in the last two weeks before lunch saying he felt low, checked and had eaten a snack.

* J helps L check his sugar in kindergarten at least 3 times a week. He never complains about this, and always calls us to tell us the number.

* J always brings his monitor on a fieldtrip or the track when they run the mile and never forgets to test there.

In conclusion, he says, J is just not checking sometimes at snack. And after dinner he needs to be reminded to bolus because he has done his homework and usually B lines to the TV or his IPOD.

He insisted on picking up J after school for ice cream and having a talk with him. He was confident he could get to the bottom of it.

And you know what…I think he did.

It turns out his alarms to check before snack go off during Math time. Every day in Math the kids are split up in groups…each group has kids in different levels so the kids who understand the work can tutor the kids who don’t. Jack is a tutor, and when his alarm goes off he is usually helping someone with some problems, and turns it off to check later. But when the snack bell rings, all he can think about is getting onto the playground. Ryan and J came up with a plan to put a second meter in his desk so he doesn’t have to walk across the room to check. J seems to think this is a brilliant idea.

It is agreed that freedom is part of the problem, even if J doesn’t realize it yet. J insists that he has no “issues” with his diabetes. He honestly thinks it doesn’t adversely affect his life at all. Ryan was clear with him that, yes we expect a lot from him, but we would expect the same from all our children, diabetes or not. I even remember now Ryan having to take my older, non diabetic son, out to ice cream to give him the same “take your responsibilities seriously” talk.

Last night J hugged me before bed. He said, “I know you are worried mom, but seriously I’m not forgetting things on purpose…I’m OK. I was just stressed yesterday because we had three assessment tests for our report cards yesterday, and it really stressed me out.”

So I offer this new epiphany that came to me at 2:00am this morning…

Could it be…maybe I’m in denial here…could it be, that yesterdays freak out session had more to do with me than it did J?

That maybe I was so freaked out about handing J the playbook that I freaked out when he didn’t play the game by my rules. That I ran onto the field blowing my whistle like an overzealous coach and called a time out on his play.

That MAYBE I’m so scared of what MAY be coming down the road…that I called it before there was time to let it play out.

That MAYBE I’m not giving him a fair chance.

That MAYBE I’m trying to take back the control I handed over to him just a couple weeks ago?

Maybe.

I’m back in the bleachers. I’ve been kicked off the field. I’ll continue to scrutinize each play…but next time I’ll show more restraint. I won’t stop the game and cry foul all together. I’ll take the role assistant coach and help him figure out how to correct his plays so he can score, and make himself and his family proud.

Thursday, February 25, 2010

Crash and Burn

I’ve had a headache for a week. And all these tears aren’t helping me one bit.

Mom of the year here has crashed. She is flat on her face. Lost in her emotions.

It’s all about J.

You know, I blog here every week like I know it all.

Like I got it all figured out and wrapped up in a pretty bow.

But I found out yesterday, that I will never know what my boys go through every day. I will never know their heartache, their fears, and their exhaustion from the day to day with this disease. I thought I was shielding them from the worst of it. I thought I was making things easy on them by doing the bulk of the work for them. I thought that diabetes was just a few seconds out of their day. That I was doing all the worrying for them…

I thought wrong.

Here is J. My responsible, straight A, bright boy. His teachers have always praised him for how ‘mature’ and ‘responsible’ he is. He has always been the ‘perfect’ kid and student. He has always taken his diabetes seriously, he has always tested, and he has always bolused. But this year is he is slowly falling apart. He needs reminders to check. I have to hound him after dinner to bolus for his food. I have to have ‘talks’ with him about taking responsibility for his body. After all, I thought, I have done it all for him up until now…how hard is it to take the initiative and remind yourself?

When he does fall off the wagon, (so to speak,) we have a ‘discussion’ and for the next week he is spot on…he checks at school and I think it all is better now. That the problem is fixed. But then the next week comes, and he ‘forgets’ to check again.

“How can you forget to check? You have an alarm on your pump and on your watch to remind you. What do you do when they go off???”

“I turn them off.”

“And you don’t check?”

“No, I don’t check.”

“Why? Help me understand why.”

“I don’t know.”

It came to a head yesterday. He hasn’t checked his blood sugar at school all week.

I didn’t yell…but I wasn’t kind. I lectured until I was blue in the face. I cried. He cried. All I could get out of him was, “Everyone expects me to be perfect. I wish I wasn’t smart, then no one would expect anything from me.”

“I don’t expect you to be perfect J. I only expect you to do your best.”

“What if my best, is sometimes perfect? I don’t want to do my best. I want to be like the other kids.”

We hugged. We came up with some ideas to motivate him to test. But I was still totally confused. I looked into my boys eyes and couldn’t wrap my head around what was going through his mind.

Until today. I read today’s article from Diabetes Mine…and it was the epiphany I needed.

Now that I have handed J the reigns…he has given himself the greatest gift he could ever ask for…

Freedom from Diabetes.

And I don’t blame him. (Man, it is really hard to type through tears!)

I mean, do you blame him? If you had the chance to sneak away from diabetes, wouldn’t you?

The risk is worth the taste of freedom to him. It is a high to be in control…to forget about diabetes for the day.

I hate that the road ahead isn’t mapped out for us. I hate that I have to live and learn, and that I will have to learn from my mistakes with J to help his other brothers when they get older. I hate that I don’t know what tomorrow holds…that we have to take it all day by day. I hate that I’ll have to pull out some tough love. That when he gets drunk on his freedom, I’m going to have to sober him up again.

This comment from a mother in regards to The Diabetes Mine article really hit me hard:

“Your story brought tears to my eyes as we face similar issues with our son 17 diagnosed at 22 months. Freedom as a drug is a great explanation for it and I never thought of it that way. That is why the artificial pancreas is not the cure, because our children will still not be free.”

My heart aches for my boys.

Until there is a cure, they will never truly be free.

Tuesday, February 23, 2010

My quest for liquid gold

I went to the pharmacy. Hello…blogging goldmine.

I psyched myself up the whole way there. I went over what I was going to say in my head a dozen times. Determined not to cry, I mustered up the courage from every nook and cranny of my being to stick up for myself.

I was Inspired by the Olympics…I was going for gold baby!!

I walked in and was pleased to see an old timer at the “drop off” cubicle. I’ve worked with her before, and she doesn’t give me too much attitude.

I walked up to her and gave it to her straight.

“I have three Type 1 Diabetics, all on insulin pumps. I usually call in prescriptions, but I’m on my last vile and don’t have that luxury this month. Here is my problem. Usually, I ask you to mail me two of the boys’ insulin, so you only have to fill one. I know you don’t have a lot on hand, so I always thought this was the best way.”

She reaches for the insurance cards…I gently pull them closer to me. I wasn’t done yet.

“But when I do this, the pharmacist, in order to keep supply on hand, only gives me ONE vile of insulin and tells me he’ll mail the rest. But I need more than one vile of insulin. I NEED at least two.”

(She is following, but just barely.)

“So what do you think? Shall I have you fill all three boys’ insulin, so he can give me one for each boy…and mail me the rest? Or shall we do it the easy way have him fill one of my boys in full, and mail the other two boys?”

She is in denial.

She tells me that they don’t work this way. She says, if they have it on hand, they will give it all to me. Problem is sometimes they really do only have ONE vile left…or for that matter, sometimes none.

“I’m not saying you are not an honest person,” I reply. “But, I have been told twice that he doesn’t like to deplete his supply, and that his hording is in fact, the case.”

She insists she is right.

I tell her I am skeptical, but I’m willing to play roulette. Let’s see if he gives me only one vile, or if I’ll hit the jackpot. I grab my insurance cards, and just am turning around when she says, “We’ll get your boys their medicine eventually, don’t you worry.”

HUH???? The room slowed, I’m drunk with anger…I stopped instantly in my tracks, and turn calmly towards her. I put my purse on the counter and look her in the eye. “As long as “eventually” comes before I run out…that will be fine. “ I smile to lighten the mood. “I’m not ordering antibiotics here, my boys can’t even go a few hours without insulin. It’s more than medicine, it’s life support.”

She nodded. “Oh, I know.”

(What ev’…she doesn’t know.)

20 minutes later L’s name pops up on the pharmacy jumbotron and I’m in line. I scan the bags on the shelf. There are many that looked like they could be one vile, and a few that looked like there could be a couple viles.

Which one was mine???

The tech grabbed a bigger bag…I got FOUR viles. Holla.

The lady who put in my order walked by. “See,” she bragged, “I told you!”

“Yay,” I said, “I think we’ll have cake tonight to celebrate!”

As she walked away the new Pharmacy Tech leaned in and whispered, “She didn’t get it.”

I smirked; completely impressed that he got my sarcastic remark. “Yah, no cake…just 20 more days of life for my boys.”

I walked out victorious. 4 viles of insulin and I didn’t even cry.

That’s gold in my book.

Friday, February 19, 2010

A Reenactment.

Scene: Bedroom, 1:30am, parents in deep sleep, drooling on their pillows, dreaming of the weekend ahead.

*BEEP! BEEP! BEEP! BEEP!*

Silence is broken by alarm. The alarm clock is across the room.

Meri nudges Ryan. (She REALLY doesn’t want to get up.)

Ryan hops out of bed. (A look of relief flashes over Meri’s face. She has a peaceful smile as she instantly falls back to sleep.)

((KERPLUNK)) Ryan is immediately back in bed. He only snoozed the alarm; he did not check the boys’ blood sugars.

Meri’s heart sinks, but she is able to fall back to sleep in mere seconds.

*BEEP! BEEP! BEEP! BEEP!*

Meri nudges Ryan again.

Ryan: “I think you are confused. That isn’t my alarm, it is your alarm.”

Meri: “What???? Is it time to bring the kids to school???“

Ryan: “Very funny.” (Rolls over)

Meri: “UHG!”

Meri rolls out of bed, dazed, walking like a drunk. Her head is throbbing from a headache she has been fighting for three days.

She checks sugars…putting her children’s life in her hands while in a state of extreme tiredness and confusion. She silently swears, “Good Hell!” as she has to correct all three children’s blood sugars.

Meri falls back into bed, and tugs unsuccessfully at the covers, trying to recover her real estate that has been stolen by said Ryan.

Ryan: (Awakened by the tugging of sheets he has haphazardly wrapped around his body) “Are you mad at me?”

Meri: “No…But just for the record the 1:30am alarm is not MY alarm…it is OUR alarm.”

Ryan: Gives a small laugh. “You’re going to blog about this tomorrow, aren’t you?”

Meri: “You bet your sweet bahootie I am.”

Ryan: Sings in a high pitched voice, “Blog worthy!” And as he rolls over yet again, he quietly curses that, “NOW, he is wide awake!”

He begins to snore literally seconds later.

And Meri? She IS wide awake…Trying to remember the conversation that just occurred, so she could indeed…blog about it tomorrow.