A blond boy who just finished third grade and has been
losing weight. His parents think it’s from a growth spurt, but he's pale. Something isn't right.
It’s a 23-year-old woman who is starting her career in
journalism and lately, she is always thirsty.
She keeps extra sodas in her drawer at work and a water bottle with her
everywhere she goes.
It looks like a 6-year-old poking his finger at a birthday
party, squeezing out a precious droplet of blood and then laying that blood on
a test strip…waiting for the countdown,
3…2…1...
He wants cake. It all depends on that number.
3…2…1...
He wants cake. It all depends on that number.
A blond boy who just finished third grade and has been
losing weight. His parents think it’s from a growth spurt, but he's pale. Something isn't right.
It’s a 23-year-old woman who is starting her career in
journalism and lately, she is always thirsty.
She keeps extra sodas in her drawer at work and and endures the embarrassment. She likes to
stay in the background. Diabetes doesn’t let her.
It’s a 50-year-old man in the middle of an important
meeting, and he has to pee. It cannot wait. He forgot to give himself insulin
for lunch and his body is insisting on purging the extra sugar. He has to leave
the meeting for a moment. His clients are unimpressed.
It’s a school principal injecting glucagon into a student
who is on the ground, unresponsive from a low blood sugar. His hands shake
violently. He was shown how to give the shot once. He’s scared.
It’s a 15-year-old boy at halftime, running to his parents on the sidelines for his stash of Gatorade so his body can sustain him for the second half.
It is a thousand people wearing blue at a stadium, raising
funds and walking together for themselves, their family, and
their friends. They desperately want a cure. The news stations aren't covering it this
year.
It’s a widowed father setting his alarm for every two hours
to make sure his child is safe during the night. His son has the flu. He’s
contemplating going to the emergency room.
It’s the ADA offering legal services to a family whose
school refuses to let their child attend because they have diabetes. It requires
oversight from a nurse. They don’t have funds for a nurse.
It’s an Endocrinologist, looking into the eyes of devastated
parents, telling them that their child’s body doesn’t make insulin anymore.
They will have to give him shots for the rest of his life. The future they
imagined for their child has changed. They mourn deeply because of it.
It is a 32 year old mother sitting on the floor in a grocery
store, singing to her baby until the banana does it’s job and brings up her
blood sugar up so she can walk again.
It’s a 21 year old college student injecting insulin before
he eats a candy bar and another student standing next to him saying, “Isn’t
that candy bar the reason you have diabetes in the first place. Should you be
eating that?” The student is too tired to explain it’s autoimmune. They
probably won’t understand anyway.
It looks like a father, who after being told of his child’s
diagnosis, was also told that cure will most likely come in the next five
years. He winces because he was told the same thing 25 years ago when he was
diagnosed.
It’s a 38-year-old woman going back for yet another eye
test. She’s worried about the complications from having diabetes her entire
life. She’s scared to death she might be losing her vision in her right eye. She
can’t talk to anyone about it. She feels so alone.
It’s a group of children traveling to Washington D.C. to
personally ask the government to help fund research for a cure. They are
poised. They are eloquent. The men in the offices have 10 minutes for them.
It’s two parents hunched over their checkbook. It’s either
buy insulin or pay their mortgage this month.
It looks like regular people living regular lives. But
nothing is regular. Every moment is touched by this disease. No days off. What
is eaten, what is done, where is traveled, it is all touched by blood sugars
and insulin.
The truth is, Type 1 Diabetes looks just like me.
And it looks just like you too.
But if we’ve been taught anything in our lives it is this: You
can’t judge a book by its cover.
Some diseases seem invisible.
Thank you Meri. This was incredible.
ReplyDeleteI (and my family) have starring roles in so many of these books that are shelved in the library of diabetes that you so beautifully described.
Soooo very well said! ๐
ReplyDeleteFabulous!
ReplyDeleteBeautifully written. It was impossible to hold back the tears
ReplyDeleteAmen... its every second of everyday of our lives..
ReplyDeleteNICE!!! LOVE it. I felt like I was reading a book or watching a movie with various snippets of people's lives that seemingly have nothing to do with each other - their lives are interesting, but not like mine - we are far apart and tangibly so different - then POW there it is - my mind/perception gets split wide open to see that we are actually all on the same wavelength - we are one. invisibilty shields the observer, not the wearer.
ReplyDeleteWell said! I cried while reading this. So many of your examples could be me. T1D looks like me.
ReplyDeleteWow, so powerful and so true!
ReplyDeletewhy? why? why I am I crying?! It looks like me, that is a powerful message. Thanks for writing this and sharing Meri.
ReplyDeleteBawling at my desk. The last lines are the most powerful and meaningful. Just when I feel alone as a D mom and my daughter because she is the only child at her school with T1, I know we are anything but.
ReplyDeleteSo painful to read...this disease has no human boundaries. I can so relate to the father and son, my 14 year old grandson was diagnosed at 2 1/2 and my son (his father) diagnosed 10 years later at the age of 37. Thank you for sharing the faces of this disease.
ReplyDeleteVery sad...but true. I'm sharing.
ReplyDeleteVery moving. I'm blogging for diabetes awareness month at the moment https://racheljgood.wordpress.com and I'd like to link to this.
ReplyDeleteThank you Meri!
ReplyDeleteAmazing!! This is so sad but so true. It makes my heart ache. Thank you for writing this!
ReplyDeleteReading through the tears. Thank you Meri. We are many different shapes, sizes, ages ...all touched in some profound way by this disease. I've lived with type 1 for the past 60 years. It's not my identity, but it's presence has and has had a tremendous impact on every day. T1D looks like me.
ReplyDeleteLove, Love, Love!!!! Thanks!!!
ReplyDeleteYou captured everything so well. Thank you so much for this powerful message.
ReplyDeleteBeautiful, thank you for this. Brought tears to my eyes for all of those fighting for their lives, every day.
ReplyDeleteYep.
ReplyDeleteThank you Meri for opening my eyes and my heart as I was sent this to read from my wife I have just been avoiding the reality that my son has T1 and I thought that it would somehow go away, this is so far from the truth and I truly would like to say that i am sorry and I will be a full time fighter for her and my son.
ReplyDeleteThank you,
Found Dad
You've made me sob. Fight for them. Fight with them. There is no power in feeling alone.
DeleteTogether is better. Warrior on, family!
Thank you again Meri, my eyes are now wide open and I would love to get more words of encouragement for I am so new to this.
DeleteI wrote this for parents of children who are newly diagnosed. Hopefully it will serve as some encouraging words for you. Much love to you and your family!
Deletehttp://www.ourdiabeticlife.com/2013/06/to-newbies.html
Shared this on my Facebook today (with link for credit to you). Thanks for writing!
ReplyDeleteThank you!
ReplyDeleteBeautiful. Thank you.
ReplyDeleteThank you. We had hope of a sports queen in our history. Due to the bully factor or being different in sports, she does nothing. She does not want to be "different". Cry when she's told at school, she's different.
ReplyDeleteVery powerful, thank you - 6 months into my diagnosis (47 years old).
ReplyDeleteThis is really touching and insightful. Thank you for sharing.
ReplyDeleteMy son was diagnosed 3.5 years ago just before he turned 3. This certainly made me cry! Beautifully written.
ReplyDeleteIt's a nurse waiting to do her insulin infront of her newly diagnosed patients to show them, and mom, it will be ok if you keep yourself infront of it.
ReplyDeleteIt's a husband keeping pop tarts and juice in his backpack to swiftly get into his wifes mouth when she faints on their honeymoon. He doesn't mind , and loves me anyway :)
This is soooooo deep
ReplyDeleteThank you for writing this. It's so powerful and raw and real. Mortgage or insulin is how we live around here and the stress is endless. Thank you.
ReplyDelete