tag:blogger.com,1999:blog-5248101319829846491.post2338728432991349110..comments2024-01-22T00:46:35.341-08:00Comments on Our Diabetic Life: Things are moving.Merihttp://www.blogger.com/profile/09752883120541646427noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-5248101319829846491.post-62305835640025276972014-01-18T14:38:31.787-08:002014-01-18T14:38:31.787-08:00Thanks Merri:)Thanks Merri:)Terihttps://www.blogger.com/profile/03658188846971783980noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-31923880267229705902014-01-17T11:38:47.791-08:002014-01-17T11:38:47.791-08:00Your writing always impresses me! GREAT POST!Your writing always impresses me! GREAT POST!k2https://www.blogger.com/profile/04167099133092135850noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-34980055001021228502014-01-16T22:19:02.762-08:002014-01-16T22:19:02.762-08:00I've heard many children have received the pum...I've heard many children have received the pump and enlite sensors because their doctor wrote a letter of necessity. You're rep has not led you astray, but it is never a sure thing. You're insurance has the final ok, although in many cases they will go with what the doctor prescribes regardless of age guidelines. Technically though, the system is only approved for over 16.Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-44555386120090659402014-01-16T22:18:03.928-08:002014-01-16T22:18:03.928-08:00This comment has been removed by the author.Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-36258887079509155912014-01-16T19:02:00.609-08:002014-01-16T19:02:00.609-08:00Hi Merri,
Thanks for all the information about th...Hi Merri,<br /><br />Thanks for all the information about the meeting you attended. Couple of quick questions for you...<br /><br />I have been in contact with my Medtronic rep in my area, she mentioned to me that there is a program called the "Pathway Program" through Medtronic. It allows those who are not due for a upgrade to receive the new 530G pump for $399.00. If you do this program you don't go through your insurance company at all. I have two children with type 1, so I was thrilled to hear this. She told me that we would order the CGM's/enlite sensors through my insurance though, I received my daughters CGM two weeks ago. My son was denied the CGM because he was under 8 years old, so the doctor is going to try to appeal it. My daughter is 9 and my son is 6. The Medtronic rep told me that with a letter from my doctor that my kids could get the pumps through this pathway program. Is she wrong? From what I read about the meeting you attended is that they aren't letting children have the new pumps. Here's the wesbite she told me to go to: http://www.medtronicdiabetes.com/customer-support/device-upgrades. I just want to make sure I'm not putting all this time and effort into trying to get these pumps for my kids if it's not going to happen. Thanks so much! - Teri S.Terihttps://www.blogger.com/profile/03658188846971783980noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-90865960273765498142014-01-16T17:52:01.646-08:002014-01-16T17:52:01.646-08:00There are some extremely good insights in your not...There are some extremely good insights in your notes, Meri. Thank you!<br />Their responses about the future true artificial pancreas are a little perplexing such as the Medtronic VP saying that an artificial pancreas will always require user input. That seems to contradict Ed Damiano/Steven Russell's T:Slim prototype of the bionic pancreas that they're currently testing on camp children and hospital staff. Their system doesn't need user input as to if the participants are eating, and so far they've found only a 10 point differerence in daily average when the participants pre-bolus versus them not telling the system at all when/what they're eating.<br />I also wonder why Medtronic still feels that glucagon isn't a viable option in a pump...there are 3 companies right now that have stable formulations of glucagon in clinical trials or almost to clinical trial phase right now. I could see that possibly Medtronic is instead strategizing that they'll go after the market of diabetics who don't want to wear 2 infusion sites plus a cgm--that seems like it could be the real reason they'll head in another direction with an almost closed loop system that wouldn't haev glucagon.<br />But regardless, all of this is progress that's desperately needed and long overdue! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-58743099984242441492014-01-16T08:52:38.920-08:002014-01-16T08:52:38.920-08:00You rock Meri! Thank you so much for sharing all ...You rock Meri! Thank you so much for sharing all of this information. We "hear" a lot of jibber-jabber about what's upcoming and why things are the way that they are. I appreciate hearing it right from Medtronic.<br /><br />I know that a lot of people were upset with the new pump being approved for 16+, myself included. Especially when my rep and those reps at the FFL booth had talked it up so much to us. Thanks for helping me take a step back and understand why it is so.<br /><br />Also, I wanted to comment about the closed loop systems. At this point, I understand why she is saying that glucagon in a pump is not a viable option...because glucagon is not yet available in a stabilized liquid format which can be used in a pump for a number of days. But, after hearing Dr. Ed Damiano speak about the "Bionic Pancreas", I am hopeful that this too will happen with time!Mistyhttps://www.blogger.com/profile/17818861980843167968noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-17947525288211656372014-01-16T08:39:23.331-08:002014-01-16T08:39:23.331-08:00That is my understanding. Not required to wear. ...That is my understanding. Not required to wear. But required with the system purchase. They come together, but your child won't have to wear the CGM component if he/she doesn't want to. Their side is the FDA approved it as a system, so they will sell it as a system. <br /><br />On a side note, they do have plans to sell the CGM stand alone. So I'm not sure if their reasoning holds water.Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-54907147069906669092014-01-16T08:10:21.583-08:002014-01-16T08:10:21.583-08:00Thanks for the information. It's nice to know...Thanks for the information. It's nice to know progress is being made.<br /><br />We don't have a CGM. For a while we looked in to getting one. Many people said that they spent the money on it and their child used it for a couple of months and then didn't want to wear it. Most were not using them regularly anymore. We have a hard time finding good sites for her pump and didn't feel like we had enough places for both a pump and CGM, and we couldn't justify the money if she would only end up fighting us to wear it.<br /><br />What I'm hearing you say is that right now, there isn't much of an option for a stand alone pump with Medtronic. That most likely next time around, she will be required to wear then new CGM (assuming it is approved by FDA for children by then)?Jenni at talking hairdryerhttps://www.blogger.com/profile/16565237769341560279noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-57444735926379186992014-01-16T06:06:09.486-08:002014-01-16T06:06:09.486-08:00WONDERFUL recap - I am impressed by all the number...WONDERFUL recap - I am impressed by all the numbers you got jotted down! Go Meri! Thank you for sharing all of this; you mentioned things I'd already forgotten.Kimhttps://www.blogger.com/profile/04857046266371772742noreply@blogger.com