tag:blogger.com,1999:blog-5248101319829846491.post4469826302214971402..comments2024-01-22T00:46:35.341-08:00Comments on Our Diabetic Life: Sharing responsibly?Merihttp://www.blogger.com/profile/09752883120541646427noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-5248101319829846491.post-34147881264771143592013-08-05T17:49:12.747-07:002013-08-05T17:49:12.747-07:00You're on Best of the 'Betes Blogs today: ...You're on Best of the 'Betes Blogs today: <br />http://bigfootchildhavediabetes.com/2013/08/05/best-of-the-betes-blogs-july-edition/katyhttp://bigfootchildhavediabetes.comnoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-62228687022170907832013-08-05T13:02:45.874-07:002013-08-05T13:02:45.874-07:00I have learned so much by reading this blog and ot...I have learned so much by reading this blog and others. All I can do is thank you for everything you've written. It really is helping. Ben Wardhttps://www.blogger.com/profile/00227624986747964602noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-7550882742414633692013-07-17T07:56:34.606-07:002013-07-17T07:56:34.606-07:00As a PWD who blogs about (my own) diabetes and als...As a PWD who blogs about (my own) diabetes and also as the parent of a little girl, I saw so many sides to this discussion, and I'm still processing. But, at the end of the day, our individual opinions about other people's decisions don't matter - it's what WE decide to do, and the choices WE make that we need to feel comfortable with, and to own. No one answer covers it for everyone. Everyone's comfort levels vary, as do their participation levels. YDMV, but your SMMV (social media may vary) as well. <br /><br />But I will say, having sat in that session and also having had many excellent discussions with the HCP who was quoted, that they are empathetic, and a huge supporter of PWD and their families. One moment of disagreement doesn't disregard the positive impact they have on this community, IMO. <br /><br />Thanks for writing this, Meri, and for speaking your mind in the session. xo Kerri.http://www.sixuntilme.comnoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-65706811353430979182013-07-16T17:51:15.182-07:002013-07-16T17:51:15.182-07:00My daughter is old enough that every blog I write ...My daughter is old enough that every blog I write is reviewed by her first. She has almost never balked. If she ever does, I acquiess. Want to see if blogging honestly is helpful or hurtful? Go back to my old, old guest blog on diabetesmine about "teens and freedom." Read the comments. It was that incredible experience that made me realize blogging was a good thing.<br /><br />and PS You are the best.Moirahttp://www.despitediabetes.comnoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-59619761515146699492013-07-16T08:10:30.842-07:002013-07-16T08:10:30.842-07:00I agree with you. It's the specifics... knowi...I agree with you. It's the specifics... knowing that someone else forgot to pack extra pump supplies or messed up a bolus or whatever... that help us d-parents know that we are not alone. I don't think a generic story about someone's A1C was would have the same meaning.<br /><br />Yours is one of the blogs that I think really does it right. I can't think of anything you've posted that your boys would be embarrassed by. There have been other d-blogs I've come across that I think "Wonder how that child would feel about that being posted?".... but then again, I quite often think that about pictures/stories people share on Facebook, and that has nothing to do with diabetes. Sometimes I think people just overshare. ;)Amyhttps://www.blogger.com/profile/05586345335424142815noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-14362766883805976672013-07-16T05:16:08.350-07:002013-07-16T05:16:08.350-07:00This is so interesting to me, because as a PWD whe...This is so interesting to me, because as a PWD when I blog it's all about me me me so it's my own choice to share. I know I can never really understand what it's like as a parent blogger, but I can say that from reading this post it sure sounds to me like you're doing it right! Love you!!Karenhttps://www.blogger.com/profile/05853213615426205881noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-85099222968729363782013-07-16T04:53:15.587-07:002013-07-16T04:53:15.587-07:00I was at the same session on Wed morning and left ...I was at the same session on Wed morning and left feeling pretty horrible about myself and quite certain I would take my blog down as soon as I got home. I am home now and my blog is still up ... Though honestly I am still struggling with my guilt ... But I think you have just proved the power of the DOC because after reading this post I feel soooooo much better. Thanks!Doloreshttps://www.blogger.com/profile/03313952947881042891noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-50579410487866441062013-07-15T19:56:28.128-07:002013-07-15T19:56:28.128-07:00Everyone has to do what's right for them and i...Everyone has to do what's right for them and if that means you 'blog it out' so you don't totally lose it, then by all mean type away!!<br />I know it's helped me tremendously to read and to blog because it helps me remember I'm not alone in this crazy life.<br />Love and Hugs and all that good stuff!!!Denise aka Mom of Beanhttps://www.blogger.com/profile/05726979027850619807noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-54731954153181912102013-07-15T17:48:47.149-07:002013-07-15T17:48:47.149-07:00I thank you for having this blog. My daughter was...I thank you for having this blog. My daughter was diagnosed six months ago and if it were not for you and other members of the DOC I would still be the "basket case" I was that first month. I feel that because of the DOC I am better able to care for my daughter.Anonymoushttps://www.blogger.com/profile/14222550672329817415noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-62838168787566692632013-07-15T17:48:05.030-07:002013-07-15T17:48:05.030-07:00"These mothers need me." ABSOLUTELY!!
No..."These mothers need me." ABSOLUTELY!!<br />Not sure about this expert you speak of.... Have they been in our shoes? I discovered the DOC and blogs through an email from the ADA. It had a link to Joanne's video about what can a type 1 child can eat. After that I found many other blogs and have learned SOOOO much. The DOC is invaluable and beyond!Anonymoushttps://www.blogger.com/profile/09357092446675054919noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-36897489249375411432013-07-15T15:13:49.215-07:002013-07-15T15:13:49.215-07:00Without sharing, many of us would be floating arou...Without sharing, many of us would be floating around in darkness. I did that for ten months. I hated it and so did my family. I can't imagine you doing it for 10 years. <br />One comment, from someone who really doesn't get it, can't stop us from being open and honest about this life. Sharing our stories are all part of advocating... our stories are not just the perfect picture hanging over the mantle. Sometimes they have blood drops and sometimes they show victory, either way, both stories are important. <br /><br /> Lorahttps://www.blogger.com/profile/07192247387107228743noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-15490274309483968312013-07-15T14:21:15.426-07:002013-07-15T14:21:15.426-07:00Excellent as always, keep up the good work and kee...Excellent as always, keep up the good work and keep the stories coming. they inspire, educate and entertain us all.Anonymoushttps://www.blogger.com/profile/03244749682557802116noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-29240579958057718162013-07-15T13:29:59.850-07:002013-07-15T13:29:59.850-07:00It's sort of like the oxygen mask thing in the...It's sort of like the oxygen mask thing in the airplane. You put on your own mask first, so that you can help your children. It does them no good if you pass out! It is EXTREMELY important for you to take care of your own feelings, and you can't use your children as a sounding board, because that is not what the parent/child relationship is all about. So I have exactly no problem with your blogging and crying and laughing, and being angry, or being happy, or whatever you need to express here. Then, as you say, you can present a caring, positive attitude toward your sons (all 4 of them), and not let them worry about hurting you because they misinterpret your sadness as something they did. You will have a MUCH better continuing relationship with them this way. I trust you to not reveal anything that would hurt them, and I say, you go girl! :-) <3<br />Nataliehttps://www.blogger.com/profile/06909597803703850020noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-53766165590495398262013-07-15T13:23:58.136-07:002013-07-15T13:23:58.136-07:00I don't know where I would be without you and ...I don't know where I would be without you and the rest of the DOC sharing. Actually, I do, and it scares me.<br /><br />So good to see you at FFL... let's do it again soon!<br /><br />Looooooove YOU!Joannehttps://www.blogger.com/profile/15030783893373288244noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-3222144609225945992013-07-15T12:32:27.091-07:002013-07-15T12:32:27.091-07:00I didn’t even know what FFL was, until I just read...I didn’t even know what FFL was, until I just read it in this post! (I saw it referenced on someone else’s blog and meant to look it up). So your blog helped me today, again. We have been doing this diabetes thing for two years now. I turned to blogs as soon as we came home from the hospital. Yours was one of the first that I started regularly reading, and I have a handful that I keep up with. I am so very grateful to you and to all of the families who choose to blog about their experiences. General posts are wonderful; you have so many beautifully written posts. But the specific stories from everyone have been and continue to be invaluable. We are continuing to learn. I feel as though I am beginning to come out of a fog. I recently decided to begin my own blog (two posts in, so I haven’t gotten very far yet), if for no reason other than to document things for ourselves. We have also decided to walk in JDRF’s Walk to Cure Diabetes in October. I am in awe of those who were able to do things like this shortly after diagnosis. Thank you for blogging. This is stressful. We do feel alone. Blogs have helped me feel a little bit less so. Thanks to you, and your boys, for sharing!Jennifernoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-13864720198540306252013-07-15T12:02:56.028-07:002013-07-15T12:02:56.028-07:00As a "newbie" (thank you SOOOO much for ...As a "newbie" (thank you SOOOO much for that entry btw) I look to your blog on a daily basis. I read about your journey and it helps me to put ours in perspective. I see hope in our future instead of tears. Thank you Meri!! Stacinoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-76880949757019952182013-07-15T10:32:28.279-07:002013-07-15T10:32:28.279-07:00I love reading your blog because I can see that I ...I love reading your blog because I can see that I am not alone. I am fortunate, in a sense, because I found a wonderful community online that can help me be a better D mom, a year and half after my son being diagnosed. The first blog I found was yours, and it had helped me always see the what I go thru is normal and that I am not alone. Thank you for sharing and it was great getting to meet you at FFL!Anonymoushttps://www.blogger.com/profile/01220529411388114821noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-9161147704597902762013-07-15T10:30:55.447-07:002013-07-15T10:30:55.447-07:00Expert? I'm not sure what kind of expert this...Expert? I'm not sure what kind of expert this person was, but they are certainly not a parent of a child with Diabetes are they? I can see where spreading posts all over FB may be "hurtful" to our Kids.....but blogging in the DOC where people come for support and understanding? I see Nothing but beauty too, and us parent ARE the experts if you ask me!Kellyhttps://www.blogger.com/profile/17009502794324247532noreply@blogger.com